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Sorry I haven't been on here for a while. Had my 2 year end of treatment anniversary at the weekend and 13th wedding anniversary the day after. This year it was nice to celebrate the wedding, share a meal and be less about the 2nd anniversary of not...
Hi everybody, I have just been diagnosed with tongue cancer on the base of my tongue. I haven't met my Oncologist yet, I see him on Tuesday, but my ENT specialist has told me that they think I will be best treated via chemoradiation. Really I have...
Happy Easter, hope everybody is doing well. Following a fluroscopy and MRI scan, after 7 weeks I've been told its not a tumour in my throat but scarring from RT, lymphodema at the back of my throat and odema!!!! I am still awaiting an appointment with...
I have been ill on and off since january 2020 , when I say ill I mean more from cancer treatment and heart failure which is just another hurdle to deal with. I wanted to recovery as quickly as I could so made a point of trying to walk and do things for...
Hi. I am on the two week pathway having had a painful throat for 2 months now. My appointment is in 11 days and I'm just not coping with the anxiety and pain. I can't sleep I can't stop fearing the worst and I'm petrified of any investigations let alone...
Twelve years fighting tongue cancer and neck cancer has left me with many side effects over the years, so I would just like to highlight most if not all the things that are now and then happening to my body 1.Fatigue 2 loss of all teeth 3 Very dry...
Hi all I’ve been reading through posts on here for the last 2 months or so and found it so helpful to read similar stages to what my husband is going through. He was diagnosed in December with stage 1 locally advanced tonsil cancer (hpv) and 1 affected...
Hey everyone, so I managed to a get a Cancellation today last minute to see the ENT about the tongue swelling and nodes. He did not seem concerned at all (which was amazing) he said that the swelling was the sublingual gland and it could be swollen from...
Steve: Tonsil Cancer HPV16. Discharged 5 March. Now on regular checks. Well, I went back to work (part-time)last week. And it was alright, I suppose. I have a very dry throat which is causing a croaky voice first thing.Im using assorted lotions and...
Hi I was wondering if anyone had managed to go abroad for a holiday in between immunotherapy treatments I've raised it with the nurse I was allocated this morning at my bloods appointment & they seemed surprised I was considering a holiday. I feel...
