Scarring

Happy Easter,   hope everybody is doing well.  Following a fluroscopy and MRI scan, after 7 weeks I've been told its not a tumour in my throat but scarring from RT, lymphodema at the back of my throat and odema!!!!     I am still awaiting an appointment with ENT, but I was told by Oncology on Wednesday there is nothing they can really do.  I am very angry at the wait, I'm very angry that it's coming up for week 7 since ENT sent me for another MRI and I am still waiting to see them.  In the meantime because of my inability to swallow (I really have tried) I am now on pump feeding to put the calories in as I have now lost 3.5 stone.  

I cannot bear to believe I have come this far to be told this.  There has to be something that will enable me to eat at least a basic meal?  I'm under the SALT team but haven't seen them for weeks either. The SALT lady who was in Oncolgy on Wednesday told me if I can drink I should be OK!!!!  I was so cross, then they sat there and debated if I could have oro- morphine and who was going to prescribe it, apparently its the Macmillan nurse, I told them usually its the Dr. He wouldn't do it.  No blood test since November.  I am only 6 months post treatment RT and chemo, hypophangeal cancer, is this right?  I think its coming down to costs????  I have to say for the first time I felt a nuisance and just wanted to go.  In fact I walked out when they started on the Oromorphine debate.

Would dcappreciate anybodies opinion or experiences.

Pauline