New here, New to diagnosis, just saying hello

Former Member
Former Member
  • 11 replies
  • 154 subscribers
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Hi everybody, 

I have just been diagnosed with tongue cancer on the base of my tongue. I haven't met my Oncologist yet, I see him on Tuesday, but my ENT specialist has told me that they think I will be best treated via chemoradiation.

Really I have just joined this group so that I can connect  with people who have already gone or are also going down this route.

Thanks in advance

  • Hi and welcome. Stay with us. There’s a wealth of information and help here

    Ask anything  no question is daft  somebody will have an answer 

    I had base of tongue cancer and I’m 4 years cleat. 
    I have a blog linked at the bottom of this post. Some of it might help. 
    Please leave Google alone for now. It’s full of inaccurate and often alarming information 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Former Member
    Former Member in reply to Beesuit

    Hi Dani,

    Thank you for that, I will definitely have a look at the blog.

    Kerry

  • Hi again Kerry. 

    I avoided chemotherapy so there’s nothing about it there. There’s no doubt side  effects are a little worse with it. Have a look at   his profile has a jolly good diary of his treatment 

    Hugs 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Former Member
    Former Member in reply to Beesuit

    Hi Dani

    Will do, thanks again

    Kerry

  • Hello. I’m 1 year post treatment for tonsil & lymph node hpv 16 positive. I had bilateral tonsillectomy followed by 6 weeks of chemo radiation. 6 chemo sessions & 30 radio. 
    Feel free to ask anything. 

  • Former Member
    Former Member in reply to Blod

    Thanks Blod,

    I will

    Kerry

  • Hi I’m Hazel almost 5 years post treatment blog below. I had 2 of planned 3 chemo. Ask any questions someone will try to answer you. 

    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Hi Kerry and welcome from me.  I went down the surgical route with no RT but am 3 1/2 years post diagnosis and living life to the max.  We've got your back on this one Smiley

    Peter
    See my profile for more details of my convoluted journey
  • Former Member
    Former Member in reply to RadioactiveRaz

    Thank you Hazel,

    I will once I have my head around it. 

    Thanks

    Kerry

  • Former Member
    Former Member in reply to PFJTHS

    Thanks Peter,

    It is great to meet so many people here and know that I can come and ask questions. I really appreciate the support

    Thanks

    Kerry