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Help Any one any tips for getting through radiotherapy and chemotherapy, my husband is about to start on Monday and we have really no idea what is about to hit us.
Hi all I had my op for parotid gland and nymph lode removal. The dentist requested my wisdom teeth be removed during surgery but as I was under anaesthetic for 13 hours they ran out of time and didn’t do it. The dentist is now saying I need to get it...
Hi all In 2019 I was diagnosed with Sinonasal SMARCB-1 Deficient Carcinoma. I was treated at the Churchill clinic in Oxford. I had TPF chemotherapy (that didn’t work), followed by an operation (I lost my eye) and 6 weeks of radiotherapy. I’ve had...
Hi all My surgery took place last Tuesday I had my uvula and right tonsil removed along with all of my soft palate there is now a really big hole in my throat and it’s so much bigger than I thought it would be, I have a surgical obturator which is very...
Hi there ,my husband has been admitted to hospital this weekend,he can't swallow ,his mouth is so sore ,he is having the nose tube fitted tomorrow,I am so worried about how he is going to get through the next 15 sessions of radiotherapy and 1 chemo when...
Hi , Is there anybody here who has a PEG and needs to take Levothyroxine daily ? I've spoken to two GPs at my practice neither were helpful or interested to be honest.My PEG is being done in a week and I don't know if I'll have to order liquid Levothyroxine...
Are you reliant on Ensure? Is your NHS Health Service planning to stop prescribing it? And if so, how are you coping? I had tonsil cancer SSC (treated with surgery, chemo + RT) in 2011. The cancer reoccured two years later in my pharynx and I had...
Hi Does anyone have any experience with oral irrigarors ? My cancer is right side of tongue and right floor of mouth. Due to this I have lost part of the floor of my mouth and find small pieces of food get stuck in the cavity, even though i try my...
So shock news from consultant yesterday that the cancer is back, neck "cystitis" is a tumour and surgery not an option. Palliative care only and maybe immunotherapy if PDR test works out to buy me some time. Otherwise it's "weeks/months" as this aggressive...
Hi. Just thought I’d share my latest find for sugar free dry mouth/horrible mouth taste relief. Love to all x
