So shock news from consultant yesterday that the cancer is back, neck "cystitis" is a tumour and surgery not an option. Palliative care only and maybe immunotherapy if PDR test works out to buy me some time. Otherwise it's "weeks/months" as this aggressive cancer does it worse.
PET tomorrow to see if spread and await immuno tests.
I feel ok
Hi Gene. All I can send his a hug sorry to hear this news. Fingers x you are a candidate for immunotherapy. It’s having good results for quite a few on here. Pop on to update as and when you feel up to doing so.
Hugs Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Oh Gene. I’m so sorry. I hope your PD-L1 scores are good for immunotherapy
It’s having some really good results
There’s a trial at the Marsden a friend of mine is on and after a couple of months his cancer is stable.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Oh no GeneS
I am so sorry to hear this. i'll be keeping everything crossed for your PDR test and that you'll be able to have Immuno.
I am palative care as well, i am on another forum called Living With Incurable Cancer. It's strictly for people who are living with cancer and on palative care. You may like to join that one, the people on there are lovely and very supportive.
Wishing you all the best
Cat x
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