Hi there ,my husband has been admitted to hospital this weekend,he can't swallow ,his mouth is so sore ,he is having the nose tube fitted tomorrow,I am so worried about how he is going to get through the next 15 sessions of radiotherapy and 1 chemo when he is in so much pain now ,he can just about open his mouth to do his mouth washes the clinician described him being in toxicity and will be until the treatment finishes ,please help xx
Hi Kenco. Try not to worry I coped and your husband will. I was 61 when in treatment and a wimp I had it in for 3 weeks during and 3 weeks after. To be honest it was a relief I wasn’t trying ti struggle with eating grinding and taking medication. It took the pressure off left me free to concentrate on sleeping and my hubby did my tube feeds and putting water meds in it. We had a chart that he made for timing. I’m only 5 foot so tummy couldn’t take a huge feed so we split it uo during the day. I asked for and go a pump which was 8n a rucksack so I could continue feeding sometimes we set it uo in car and I fed on way it was a jour year iver an hour. Some people prefer to feed during night. It was my lifesaver.
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Kenco. Sorry to hear that things have taken a bit of a downturn but the scenario is so common. I couldn’t swallow anything by the end of week three and had to endure a weekend in pain and unable to even drink before I was admitted after my RT session. I got rehydrated, got my analgesia sorted and an NG tube fitted. I was good to go and never looked back. I hated the rigmarole of bolus feeding in the day and hated losing the independence that went with my husband doing everything so I pump fed slowly in the night and largely managed my own meds through the day.
Your husband will get through. The morphine you get to dull the pain while making you pretty sleepy does a good job. We can take a heck of a lot. I had long acting morphine twice daily to hit the background pain with added oramorph alternating with paracetamol every two hours. I was comfortable enough to join in with family life
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thank you ladies for replying the tube is now in and his mouth has cleared up alot compared to the other day he can come home on Friday,feeding during the night is a really good idea x
Hi really pleased mine was a lifesaver am sure yiur hubbys will be as well it takes away a lot of the stress and worry
Hazel .
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
My partner seems to be having trouble with his. The first was too long and was removed and another put in, first night back at home it came out so a 3rd was put in. Today it seemed to be coming out but then went back in, weird. When we went for his radiotherapy today he mentioned it and they were going to replace it but said it was in the right place. I know he is worried that it isn't and is making me worried. He accepted all the side effects, they were to be expected but don't know how we will cope if he is constantly worrying it's in the wrong place. Any advice please. X
Hi his he checking the p h levels prior to feeds going in? My hubby checked mine each time before anything)g went i that way the strips showed by the ph level it was in the tummy as the acids showed that in the readings. That’s the simplest explanation i can give. Not everyone checks their readings we did as my hubby was a trained first aider. Tell him to trust his team if they’ve checked it today, Mine never moved I did use microphone tape to keep it in place around top of my cheek.
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
I had an NG tube for a month and the only time it seemed to get displaced is if I had a coughing fit or vomited. I hope your husband is settling down with his now - they are a lifesaver
September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 2 years all clear. See my profile for longer story
My NG tube was put in while I was having my op and they secured it inside my nose with a stitch so it did not move. I was shown how to measure it daily to make sure that the length had not changed which was an indicator that it had moved. This seemed to work well. I guess the issue is that they can't secure it with a stitch if it is put in after surgery which is a pity. I had to make sure that I did not accidentally pull it when getting dressed and was told not to secure it with a safety pin to my clothing to make sure this did not happen.
Hope things are settling down now for your husband as the NG tube is certainly a life saver.
Lyn
Sophie66
Thanks, he's in bed now but I'll let him read this tomorrow x
You should have been given pH indicator strips and shown how to use them.That way you are certain it’s in the right place.
I secured mine at my nose and on my cheek.
Mine came out twice when I vomited. The first time it was replaced the second time I pulled it out and threw it in the bin.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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