That's us now 2 weeks till start treatment for my husbands scc of tongue hpv positive with 2 lymph nodes involved. 6 weeks radio and chemo starts on 7th July. An abundance of appointments before that with peg being fitted on 4th of July. My husband is...
Happy Father's day everyone I find myself posting here again, June has been the hardest month grief wise so far. I had my birthday on the 1st, Dad's on the second then fathers Day today. It's been a consistent barrage of reminding of the loss that's happened...
Hi Everyone. Hope everyone's doing well. Just wanted to post an update after this weeks surgery. Had surgery on Tuesday this week and had level 2-4 neck Dissectomy and Tongue base mucosectomy. All seems to have gone as planned although left with a...
22 weeks ago today I started treatment. 6 weeks of RT (64.8 Gy) and 5 weeks of Carboplatin. I had the PET scan at 3 months post treatment and received the news of Complete Metabolic Response a week later. For me Treatment was Brutal and Recovery was...
Today we went for discussion about treatment planning. My husband has scc hpv16 positive tumour on tongue. Oncology seem confident can offer curative treatment. They are saying 6 weeks radiotherapy and Cisplatin chemotherapy on weeks 1 and 5. My husband...
Hey all Thanks for all the wonderful help offered here, I constantly return here to search for help and advice and it’s really helping. I’m now starting my 4th week of recovery, Oropharyngeal 30 RT 2 Cisplatin, I’m really happy for the most part,...
Oral cancer right cheek. Stage 2. Had option of RT or surgery and chose RT. Finished at end of Feb. Had PET 2 weeks ago, today was Results Day. Except it wasn't. Registrar (never seen before) said there was "some uncertainty" about one area of cheek...
I had surgery for both 5 and a half weeks ago. I'd like advice on side effects that others experienced after this. At present I still experience mild pain in my throat, half my tongue is numb and has no sense of taste and I have shooting pains in my shoulder...
Hi all. I was treated at Ninewells hospital in Dundee and had my PET CT scan on monday. They have been analysed already. Do they give you the results before the follow up meeting or at the meeting? I know Peter was there as well so if he’s reading this...
Hi guys thought I’d pop in for an update. I’ve still got a sore throat but it’s getting better slowly. I can eat most things now that’s not dry and not bread. And a dry mouth at night got some spray that’s peppermint flavour that helps. Throats a bit...
