Hi all, just looking for a bit of guidance really. My situation at present, is that I can still eat (although everything burns my mouth and tongue) and can still swallow, but everything tastes like dirt. I have this constant foul taste that taints everything...
Hi all! I hope you are all doing well. It's been two weeks since I last posted and I've read everyone's lovely well wishes for Paul and myself, so thank you so much. Last week was hard - Paul was due to have his RIGG tube fitted on Monday and...
Hi folks, Been a long time and I feel cheeky posting this. I had planned to post a 'hey life is OK 4 years on' message next week. I have been really struggling the past couple of weeks with discomfort, not really pain, in my stomach (a tugging where...
It's been a while since I posted; no excuses really, just been really busy with loads of hospital visits (6 weeks radiotherapy and recovery, follow ups, maxillofacial prosthetics consultations, oncology reviews, scans etc). I had my final post treatment...
Hi everyone, I had the results of my post treatment MRI today and it appears I'm cancer free! I didn't expect it as my tumour was stage 4b and had invaded the bone of my eye socket, so there was mention of potentially removing my eye! But I'm clear! I...
After initial appointment was delayed due to staff shortages at the Victoria Hospital (Kirkcaldy) yesterday I attended and had the procedure done. Was pleasantly surprised how 'comfortable' it all was, although I'm sure the high dose of sedation probably...
Hello everyone, I just wanted to do a short follow up regarding my experience. I was diagnosed with P16 positive squamous cell carcinoma at the base of my tongue T2 N1 M0 and received 6 weeks of radiotherapy and also chemo at week 1 and week 4. It has...
Hello everyone I'm not sure what happened to the last post I tried to post but I'll try again. Me and Ollie are doing good at the moment he's entering the toddler stage and is a little terror, I know dad would be laughing at me entering the toddler stage...
On the 14 th November 5 years ago I was diagnosed with H&N cancer SCC HPV+. I have made the 5 year survival stats! The first 4 years were really good despite almost an annual “re-appearance scare”. Despite a total of 8 operations I have had a good life...
Hi everyone, Just an update after completing week 3 of RT and 1 chemo. This week's been a tough one as I've lost all sense of taste except for a slight hint of my coffee in the morning. I'm struggling to keep eating as everything tastes yuck. I'm...
