On the 14th November 5 years ago I was diagnosed with H&N cancer SCC HPV+. I have made the 5 year survival stats!
The first 4 years were really good despite almost an annual “re-appearance scare”. Despite a total of 8 operations I have had a good life. I have eaten well and travelled to amazing places. I have recovered from the treatments and walked in the Andes and on Antarctica, hit the roller coasters in Florida, cruised from Miami to Rio de Janeiro and travelled the NC500 to name but a few things.
Now, if you are reading this on the 15th November, then one year ago my cancer re-appeared and this time gave me a viable target for chemoradiation treatment. That put paid to our plans to travel to Asia (at least for this year) and treatment commenced at the start of the New Year. Now, 10 months post treatment I am back to doing most things as well as eating reasonably well – although I do have a rather narrow diet just at the moment. I have just completed a 5 week holiday along the UK east coast including a detour into Wales to do the fastes zip-line in the world!! All the regular checks seem OK and have confirmed that travel insurance is once again in place so bring on the adventures (suggestions in the replies ).
Hopefully this will give some hope to those who are frightened about a diagnosis, or are just starting out on their journey that the quality of life post treatment can be really good. It is up to you how good you make things. Advocate for yourself and take an active part in your treatment and recovery. That way you will have the best possible outcome.
And Hey!... let's be careful out there, but enjoy life.
Now, 10 months post treatment I am back to doing most things as well as eating reasonably well
Hopefully this will give some hope to those who are frightened about a diagnosis, or are just starting out on their journey that the quality of life post treatment can be really good
Well done on navigating a rather tortuous road. Good to read how well you are doing and that can only encourage others.
Advocate for yourself and take an active part in your treatment and recovery. That way you will have the best possible outcome.
I'll add that this Community is one of the best resources there is ....a motley collection of fellow sufferers who know how it goes and can prop each other up at the worst and best of times
Long may you ZIP along, Peter
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Well done Peter....we cannot let the shadow of cancer rule our lives, getting out and about and challenging ourselves is an important part of our recovery, setting targets gives us something to aim at....17 months post treatment and things are still improving....dental hospital appointment yesterday then off to a very nice Indian restaurant for lunch....tried a chicken Tikka Masala...with a little Bhuna on the side....not an option for the past 17 months ...managed it with no problems...another hurdle cleared.
Peter
yeah, gotta keep on keeping on... hey, I can feel a bit of Curtis coming on.
Loz (61)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
Brilliant news Peter and well done for coming through another brutal journey.
These kind of posts definitely give hope to us all and cement these forums as somewhere really special.
Still having to push myself a bit to enjoy food, but the stubbornness in me is definitely helping. Off to a gig tonight, and no doubt a few pints too. Not as much as before, but anything for that semblance of normality and a good life.
It's amazing how cancer can completely change our outlook on life. Prior to this year I used to get stressed about anything and everything (ask my wife what I used to be like with road rage !) but now I just smile away to myself and realise that there are far more important things to worry about, and life is about enjoying ourselves and making the most of the one crack we have it.
Well done again, and huge thanks for putting another big smile on my face today
Hi Peter many of us have been with you since day 1. I can only echo your sentiments one life just live it. I’m sat typing this in Santander port waiting for ferry to Portsmouth. We’ve had 22 trips since my treatment finished . Many more to come as well.
Bring motor home and fo the hidden delights of northern Spain as well we’ve done extramadura and Granada this times as well as our base in Murcia. Try the via Ferrara in Andalusia
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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