Can Eat, Don't Want To . . . what to do?

Hazel7797 said:

What did any of you do i you had this problem? 

I abandoned eating entirely and  used my feeding tube. Honestly, what was the point if adding even more suffering? I pump fed at night, didn’t have to fight to eat in the day and found time to get out with the dog, talk to the bees, read and watch tele, much better than fighting with food. 

yes, this.. pump feed overnight and eat if/when you feel like it.. 

Hi Hazel 

I remember being in hospital with weight loss problems due to PEG feeding issues, food trolley came round and I badly wanted and needed most things on it, strangely had no taste or appetite so that was a no-no...relied on pump feeding until things improved,and improve they did ...takes time.

Did enjoy alcohol free Guinness then, still do, gets some extra calories in.

Peter 

Thanks Dani, I think that's what's I might do, as it's such a struggle trying to find things that I like to eat, and then discover it all tastes like dirt!  One less thing to worry about then.

Hugs, Hazel x

Thanks Peter!  I think I've only lost a pound or two so far.  I will get calories in when I can.

Hugs, Hazel x

Thanks Loz.  Don't eel like it at all now, but was worried that I should really be making more of an effort.

Hugs, Hazel x

Hazel7797 said:

worried that I should really be making more of an effort.

Just to warn you that your team may cajole you into not giving in to the tube and that stopping g eating may cause your throat to forget how to swallow. 
There are masses of folk here who give a lie to this. I did my swallow exercises and I’m fine. 
Looking at my last scope it’s obvious that I have lost a lot of the muscle at the back of my tongue and my oncologist is pleasantly surprised that my swallow is unaffected. 

Hi Hazel

I think it is fantastic that you can still eat but is it really worth forcing yourself and putting you through unnecessary pain? Maybe try to stick to the food you still enjoy and increase your fortisip or ensure to get the calories you need ? That way you will avoid also getting anxious before eating knowing that the food might taste like dirt and you may feel pain. YOur taste buds will come back but is takes time. 

Best wishes.

Fab1

Beesuit said:

Just to warn you that your team may cajole you into not giving in to the tube and that stopping g eating may cause your throat to forget how to swallow. 
There are masses of folk here who give a lie to this. I did my swallow exercises and I’m fine. 

Thanks Dani, I will continue with the swallow exercises and do what I can eating wise.

Thank you!

Hugs, Hazel

Fab1 said:

is it really worth forcing yourself and putting you through unnecessary pain?

You are right Fab1, I don't want to become an anxious eater, I've always looked forward to my food. I didn't overindulge, but I did love what I ate.

Fab1 said:

YOur taste buds will come back but is takes time. 

I'm so happy to hear this.  Thanks you!

Hugs, Hazel x