Hi all!
I hope you are all doing well.
It's been two weeks since I last posted and I've read everyone's lovely well wishes for Paul and myself, so thank you so much.
Last week was hard - Paul was due to have his RIGG tube fitted on Monday and we did the whole NIL by mouth and he went down just before 12 noon to Xray to have the procedure - he came back 1:45 mins later and it had failed - to say he was upset was an understatement to say the least - he was told he then had to stay in to top that bad day off!
I was allowed to bring him home on the Tuesday, sore and battered lol.
We ended up doing a really good day at work on the Wednesday driving from Preston all the way to Weston Super Mare (we are coach drivers) and we had a lovely day driving and together.
He went back into hospital on Thursday for them to try again and this time he was really anxious because he knew what to expect and was super worried it wouldn't work again.
Luckily it worked! It took some doing apparently and he's now very bruised around the site area, and he's sore as they have had to pput it basically over his ribs so one of the nodes sits right on the rib so every time he does a cough, sneeze or burp he feels it! Lol
Today, Monday 25th Nov was his first radiotherapy appointment. I went with him for moral support.
He has his ffirst chemo and radio double day tomorrow and I'm taking the day off to be with him tomorrow.
The mask actually feels tight around his throat apparently so he worried he had put on weight but we also wondered if the cancer had got bigger as we know it's been growing over the last 8 weeks!
He's moving in the right direction.
We finally have free hospital parking which has saved a huge amount of money and we were told to contact DWP to claim for PIP and we got the form end of last week so we have an appointment to get some help to fill that bad boy in!! 30 odd pages is just horrifying!
Do any of you have any recipes or places we can go to get some for the next few weeks as we have read he shouldn't eat a whole load of things with having Chemo!! Paul is already on soft foods now and he wants to keep eating as long as he can even with the tube in etc.
We have taken on board all the bits and bobs people on here have been recommending which is helping.
Hugs to all xx
