Hi everyone, just wondering if anyone who's on immunotherapy has noticed any changes in their throat since starting treatment ? I've noticed some changes to my hearing which was virtually gone before I started treatment but it fluctuates and its the...
Hi did anyone on the forum have problems swallowing BEFORE diagnosis / treatment , I'm having difficulty swallowing and have gone onto soft food but even drinking is difficult. Sometimes I choke up the food because it won't go down. How did you manage...
Dear all, Here i am finished my treatment on Friday and I can’t explain how happy i am how was my experience???? hm, after my second chemo i was poorly as i was very nauseous all the way to the end. I lost kg a lot, and I can’t eat as much… no...
I had Tonsil Cancer Stage 1, 6 years ago and i am discharged from Royal London 3 months ago. but i am worried i my return somewhere else. I would like to know if i can have a yearly cat scan to put my mind at rest.
Well today I had an appointment that I only knew I was having when I was rang up on Monday. I met my speech therapist and had my swallow test --100 ml water in seven swallows in 10.3.seconds. I have my pre op assessments tomorrow for both surgeries and...
Hi. I have appointment to see consultant next week for PET CT & MRI results. I had PET CT nearly 4 weeks ago & MRI last week. I am getting more & more anxious & scared about the results. I had bilateral tonsillectomy in Jan, a PEG fitted in Feb & finished...
For any gardeners or walkers out there, if you’re like me you’re constantly looking for ways to shield your neck after radiotherapy. Today, whilst trying to escape the sun in Salisbury, I came across this rather fetching U/V and U/W protective hat in...
Hello again, I have recently had a fluoroscopy of my swallow to see why I’m making no progress with swallowing food 14 weeks after radiotherapy finished. It quickly became clear that I have a stricture near the top of my oesophagus which only allows a...
Hi , me again… very sad and scared… I missed one chemo due to covid 2 weeks ago, had one last week and today I missed again as my wbc are low…. Waiting for radiotherapy but as my cancer is stage 4 , aggressive I’m so worried that it is not enough treatment...
I have been waiting for a while now for my reconstructive surgery after having 2 maxillectomies my first being in October 2019 and my second in Feb 2022. There are so many different doctors involved including a peridontologist so they all need to coordinate...
