Not long to go, and met my speech therapist today.

FormerMember
FormerMember
  • 8 replies
  • 48 subscribers
  • 653 views

Well today I had an appointment that I only knew I was having when I was rang up on Monday.  I met my speech therapist and had my swallow test --100 ml water in seven swallows in 10.3.seconds.  I have my pre op assessments tomorrow for both surgeries and my first surgery is next Tuesday...  I go in the day before so they can starve me properly and will operate early in the morning. I am starting to feel nervous now. But still not really cried or freaked out or anything ... have wondered how normal it is not to. Surely I am not the only one to 'take it in their stride'?  

Also I have mental health conditions so wonder how my mental health interacts with my diagnosis. I have Borderline Personality Disorder and complex PTSD from trauma I experienced as a child. So I have been through a lot already and wonder if I am stoic regarding my cancer due to this, in fact I know the answer I am stoic because of it, but it makes me feel like others may think I am weird not to panic or freak out.  I have a very supportive husband but my family are finding it hard to cope with it, I'm the first 'not old enough to be dead already person' to get cancer in my family since my grandmother died in her early 50's my poor mum was only 12. 

  • Being stoic will hold you in good stead, Nora. But meltdowns are allowed. Look after yourself and don’t worry about the family. This  us your time. Best of luck 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Nora. Nothing wrong being stoic, my oncologist said he would cure me and take a year out of my normal life he did both. I took attitude can’t  worth about stuff I’ve no control over. I did my blog ss I had control over that. That’s not ti say some  days I was up crying on kitchen floor when treatment started plus some days I spoke quite cruelly to my husband who took over all household stuff for months. Speech and language people are worth their weight in gold when  you get exercises do them i did mine in car going to hospital. 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • You're fine to be stoic.  I only had a hissy fit twice.  Once at Christmas lunch  shortly after my diagnosis and once when I seriously thought I had a second reoccurrence a few months back.  Other than that I've taken everything in my stride, but my wife... that's a different story.

    It is great that you've got a very supportive husband.  As to the rest of the family, once treatment starts I am sure they will find it easier to reconcile what is happening and they will be able to accept it.  It must be scary for them - I know it was more scary for my family than I found it.

    Peter
    See my profile for more details of my convoluted journey
  • Hi Nora

     I am glad you are coping with your diagnosis and there is nothing wrong with being stoic. After the initial shock of a cancer diagnosis how you cope is a very individual thing. I decided I had 2 options to either go to pieces or to be stoic and like you I chose the latter. Not to say there weren’t a few meltdowns after my operation when I felt low in spirits. Don’t be surprised if that happens to you too as you start to cope with some changes in your life. Go with what works for you and you will get through this stage in your life. Getting an early diagnosis is half the battle.

    Wishing you all the best for your operation and recovery.

    Lyn

    xx

    Sophie66

  • FormerMember
    FormerMember

    Update to above:

    First thank you for replying to me, I am feeling very weird right now like I am not real with could yet again be my BPD or could be due to having been diagnosed with cancer and going in for surgery on Tuesday. I had my pre op assessments for both ops yesterday and good news I don't have to go in on Monday but early on Tuesday so one more day of normality or what passes for normality these days considering I have gone to more hospital appointments in the last hospital appointments in the last month than in the last 10 years!

    Still stoic... spoke to my mum by video call this morning which I think made her feel better to actually see that I still look like me.  I feel a vague anxiety about not being at home to make sure everyone, well Hubby and the cat, will be okay but this is just anxiety on my part. I know everything will be okay. So yes it's still getting closer and like a child looking forward to Christmas but with out any presents and definitely no Christmas Dinner! 

  • Hi Nora The reference  to Christmas dinner made me laugh. My treatment finished 31 August and I did manage a Christmas dinner on a tea plate instead if a dinner plate. Take any positive s that this throws you an extra  day at home is a bonus. Glad yiur mum saw you via video. 
    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    Hi Hazel,

    Always good to raise a laugh, we all need a laugh that's for sure.

    Yes I am very happy about the extra day and night in my own lovely bed... I am not having any trouble going to sleep so I take a lot of positives from that.  I am anticipating that my Christmas dinner might actually consist of mashed sprouts. mashed potato, chestnut puree and gravy by the time it comes around.

    x Nora x

  • Hi Nora Make it mashed sweet potato  far easier and you’ll not be far off, many if us struggle with mashed potatoes we all think they are easy but they tend to be one of the grails.I’m fine with them now lashings of gravy always helps.

    Enjoy your extra night in your own bed  

    Hazelx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/