We did it Last week I cycled 100miles to all the hospitals involved in my treatment, Bedford Hospital diagnosis and where my CNS is based, Luton and Dunstable where I had my teeth out, Lister Hospital where I had my RIG feeding tube fitted and Mount Vernon...
Hi everyone, I had a review over 2 weeks ago , dietitian was very pleased with me as I’m eating much more & I’ve put on half a stone , she said carry on doing what I’m doing & my rig probably can come out this week .I had another review Wednesday but...
Hi All, Just want to have a rant !!! I have not been able to convince my GP surgery to prescribe me Durophat 5000. I had been getting it via my dentist until they, like all dentist it now seems, decided to go private and tell me they can no longer...
Hi I , I have temp , I have been see by consultant on Wednesday, mucosiist is really baaaad . Have antibiotics. But my blood was bad as well. thinking about trip to hospital but is Saturday night… and most important I have last 5 RT treatment , so scared...
Hi everyone pre op all done , biopsy set for a week today. Have been up half the night coughing and bringing up awful green/yellow muck and feel like an elephant is sitting on my chest . Phoned the gp but you rarely get to see one anymore and I have...
So, yesterday saw Consultant, well I ssy saw, on a screen, lovely lady. Went through everything with me. So tomorrow another dreaded MRI scan so seehow far its spread in my throat, pre assessment Monday, teeth out, yes 6 of them on Thursday! Mask fitted...
Hi all - updating on my RIG being fitted and starting week 4 on Monday! My hospital trust policy is for everyone to have a RIG fitted. Unfortunately they kept talking about it but no-one could sort it out due to bed capacity and staff holidays... Finally...
Hi everyone, last week I met up for a follow up appointment at hospital with my consultants and after having a PET scan and then a CT scan on my kidneys I got told the news that my treatments were a success and they were pleased with my progression ,...
Hi everyone , had another call from the hospital and my MRI has been cancelled this afternoon as the machine has broken down (Apparantly it's happening a lot at William Harvey hospital) the team have reeboked me at another hospital but can't get in for...
Operation set for 11 July taking away teeth the roof of my mouth leaving holes to nasal passage and sinuses. Putting in a plate and screwing it in place. What I fear is gagging. I have tried dentures before £160 NHS one that I couldn't tolerate but I...
