Tonsil Cancer

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I had Tonsil Cancer Stage 1, 6 years ago and i am discharged from Royal London 3 months ago. but i am worried i my return somewhere else. I would like to know if i can have a yearly cat scan to put my mind at rest. 

  • Hi Geraldine and welcome. Congratulations on getting this far

    By six years you are likely out of danger from lung mets and anything else would be expected to to show symptoms before it showed up on a CT scan. Why don’t you ring your oncology department to reassure you. 
    Stage 1 is really small. What treatment did you have and were you HPV positive? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I don't believe that is available post discharge.  We all worry about reoccurrence and have to deal with it in our own ways.  Obviously you could pay for a private scan. 

    What I would say is that a reoccurrence post successful treatment is quite unlikely, especially after the 5 year discharge point.  I did have a reoccurrence and that happened just over a year after my first treatment and did not show on the scans, even when the knew where it was.  I do understand your concerns, but for most it is very unlikely.

    Peter
    See my profile for more details of my convoluted journey
  • Thank you Peter but my cousin had the all clear for 12 years but shes got in her bones now. Thats why i am concerned of a return of the cancer  some else in my body

    Found out i have Cancer and i am in shock

  • Radio 34 rounds and what is HPV Postive?

    Found out i have Cancer and i am in shock

  • What cancer did your cousin have ? 
    HPV is human papilloma virus which is responsible for 80% of oropharyngeal cancers. It has a much better cure rate 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • And yes you can have a yearly CT if you pay for it but you would have to have a whole body scan with all the X-rays that entails. I would be suspicious of any private clinic offering that I’m afraid. 
    Maybe be some sort of counselling might be in order? To help you overcome the quite understandable fear. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • My apologies Geraldine. I see you’ve talked to Macmillan about this in previous years. I’ve looked up your older posts. Perhaps there might be some help there again.  It’s no fun being on tenterhooks about recurrence

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • i have regular smear test which have come back ok. Google imforms me there isnt a blood test for HPV. My cousin had it in the neck first time. Now she has it in her bones and spine and is in a wheel chair 

    Found out i have Cancer and i am in shock

  • Thanks i will do. Chin your chin up and thanks again

    Found out i have Cancer and i am in shock