Moving on after treatments

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Hi everyone, last week I met up for a follow up appointment at hospital with my consultants and after having a PET scan  and then a CT scan on my kidneys I got told the news that my treatments were a success  and they were pleased with my progression , was such a relief after a anxious wait .  Now have to visit hospital once a month for sometime for checks etc .  Am still trying various foods to consume ,  with of course ,  the dry mouth/throat ,  which everybody seems to suffer with having such treatments . Need to get fitness levels up again too , so steady progress hopefully will give some normality.  Sometimes I seem to suffer with cold hands , apparently an after effect of chemotherapy ? Also a bit of tingling sensation ( pins and needles )  Anyone else had these symptoms ?   After going through the months of hell , like all of us , the treatments and after effects can be very testing but there is light at the end of the tunnel . Thank you all on on going advice , it’s been a great help to me .

  • Hi Ozzer great news with your scans and your consultant being happy with you. Eating is trial and error really, start off with soft foods porridge, rice pudding, semilina, poached or scrambled eggs on toast ( surprisingly I found toast easier to eat than plain bread) etc, try adding butter and full fat cream where you can. As for cold hands, I had cold hands and feet for quite a good while, also fuzzy feelings in my legs, I think these are all things that the chemo and RT leaves us with, they will pass with time. You seem to be doing really well. All the best. Regards Ray.

  • Thanks Ray , all the things you have mentioned with food I have been trying out and your right about toast , I had that advice sometime ago seems strange toast is easier than normal bread ? I have exactly the same in tingling feelings in legs , especially after going for a short walk , good to no it’s normal effects . Ken 

  • Hi Ozzer well done. Just carry on doing what you’re doing it’s a marathon not a sprint and you’re getting there. I too found toast easier than bread for a good while. Poached eggs on smashed avocado on well buttered toast. Toasted fruit tea cakes  grill with cheese on top . Soup home made with extra cream. I found battered fish ok sweet potato easier than ordinary potato to start with. Roast veg lots of olive oil are easy to eat as well courgettes aubergine etc Cold hands are a side felt if chemoit will hopefully improve mine did after a few months.
    good luck and yes there’s light  light at the end if the tunnel

    Hazel x 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Ozzer and congrats. I can’t improve on the dietary  advice but I can offer some help with your pins and needles. Peripheral neuropathy is chemotherapy related and I know it can be improved using those squeeze stress balls that folk use to improve hand strength. You could give that a go. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you Dani will keep that in mind 

  • Hi

    i hope you dont mind me asking? 
    2 weeks ago, i started getting tingling in my legs when i put my head down?? Awaiting MRI of neck. I finished radiotherapy just over 3 months ago. I’ve convinced myself ive gor spread of cancer to my spine !! So, i was interested to see you had tingling in your legs too ?? Part of side effect of radiotherapy??? Did yours occur when you moved your head?? 
    thank you Blush 

    Elaine 

  • I had that Elaine. When I looked down my legs and lower back tingled quite badly. I was told by my oncologist that it was Lhermitte’s Sign and quite common and quite harmless. It put the wind up me though. Eighteen months on and it’s almost totally disappeared. 

  • It’s lehrmittes

    Its really common after RT. I’m surprised they don’t put it in the list of side effects. 
    I had it too. It’s disappeared but hung around slowly improving for a couple of years. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Oh thanks Mark and Dani!! 
    i have just “googled” it and it is exactly what you said. 
    my GP didnt know hence awaiting an MRI but naybe i dont need that now? Its also worse when i am active such as walking!! The cancer i have/had spreads along nerve fibres so id literally convinced myself it has recurred in my spinal cord or something-thanks, i feel relieved. 
    Hope theres no other post radiation suprises!! X