Diasappointing

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 Hi everyone , had another call from the hospital and my MRI has been cancelled this afternoon as the machine has broken down (Apparantly it's happening a lot at William Harvey hospital) the team have reeboked me at another hospital but can't get in for a week so 2August it's very frustrating and disappointing when I had geared myself up for having it and getting another job ticked off before I get the results . I know its nobody's fault but inside I'm so bloody angry why do things have to be so difficult.

  • I know it free treatment from NHS which is blessing but they always delay treatment and tests.sorry to hear this

  • Just hoping it's not cancelled again my Consultant wanted it done before biopsy but at this rate it won't happen. Nhs and its staff are wonderful its the fact that they don't get enough money to maintain it.

  • Try not to worry. I had a long interval between diagnosis and treatment, 2 months, and I’m still here. 
    I really do sympathise though. Covid and it’s ramifications have upset so much diagnosis and treatment. I never wanted cancer but I’m so glad I got it before  Covid. Hospitals are up in arms that the NHS salary increases are largely coming out of existing budgets and they have been asked to look at making economies in diagnostic pathways. It beggars belief. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Wow so do you mean they are almost blackmailing nhs staff, as in you can have a pay increase but your patients will have less services? That's terrible and makes me very angry and sad for the future of the nhs 

  • Yes. The whole thing needs a shake up from the ground. But who is going to have the courage to do it? 
    Hang on in there. There’s light at the end of the tunnel. We just have to be more proactive than we are used to. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • I'm used to fighting other people's corner. Just not so good with myself but I'm going to need to do it 

  • The diagnostic machines will be on a repair contract from the supplier.  Potentially the spares are in short supply - we all know about the electronics shortages - or the service staff have covid.  None of that helps get the diagnostics sorted to help determine the right course of treatment, but it is only fair to lay out the reality.

    Peter
    See my profile for more details of my convoluted journey
  • The salary increases happen like that most years but are then "paid back" through increases in contract values and other methods.  However, this year it may be a little more difficult to square the books.  But I heard that for each of the 20 years I worked in/with the NHS...!

    Peter
    See my profile for more details of my convoluted journey
  • I’m just eaves dropping on the consultants’conversations. That and the pensions debacle. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi try not to stress a week in scheme of things won’t make a difference. From starting the cancer pathway to first day of treatment I was 63 days. But I first felt the lump in March and was away in Spsin thought I had pulled a muscle so ignored it until mid May. It won’t be helping you mental health just try to keep calm. 
    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/