well that went rather well, after a bumpy start.. PEG decided to give off a pink discharge after cleaning 1st thing.. swiftly cleaned up and loosened a tad by radiology head.. a bit of a pressure sore going on, with it being too tight..managed to get Flamagel RT, after explaining my situation, so I can get that without going through GP now.. most helpful, I must admit.. they're working to arrange my start times to fit with my daughter giving me transport.. but a bit of a sore throat though, not helped by my wife deciding to make candles, to while away the time... the smell of resin is just killing me.. oh hum.. apart from that I feel good, in a good mood. ready to eat ham + cheese omelette and chips. plenty of drugs to take tomorrow and next 3 days, and some anti sickness, if I need them... so, onward and upward.. pleased with today, I must admit.
oh, and afterwards, on the way out, I had the opportunity to try something, the name of which escapes me now.. but you stick this cling film covered 'lollipop' on your tongue for 1 min, under your tongue for 1 min, then you place this disc like thing on along your jaw, and lips, all for 1 min.. it is hoped that it reduces the after effects... we shall see, and hopefully I'll get the name tomorrow..
it appears there maybe a clash with my erythromycin.. so that will be an interesting conversation..
Loz (62)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
Antibiotics encourage fungal and yeast overgrowth. Hope you get somewhere with it.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Let us know how you get on.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Let us know how you get on.
definitely..
Loz (62)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
Hi Loz
I had three bouts of oral thrush ...treated with Nystan.....prescribed by support team and GP....told that thrush was common with CRT treatment received.
Peter
nystatin maybe an option.. thanks..
Loz (62)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
Sunday, and it seems that mouth pain has intensified.. so started day with Difflam..
Loz (62)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
Tick off the days.....nearly there. But get it right. I ticked mine off but got in a mix up over Christmas and New year. I pitched up on January 22nd all smiles (inside) ready to say goodbye to the radiographers only to be told I had one more. I can't describe the desolation I felt.....I still do when I recall it. .....daft!!
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
ulcers now appearing on roof of mouth..
Loz (62)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
Gelclair was my go to...that and lots of morphine, especially the long acting one that took care of all the background pain. Hugs
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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