1st one done..

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well that went rather well, after a bumpy start.. PEG decided to give off a pink discharge after cleaning 1st thing.. swiftly cleaned up and loosened a tad by radiology head.. a bit of a pressure sore going on, with it being too tight..managed to get Flamagel RT, after explaining my situation, so I can get that without going through GP now.. most helpful, I must admit.. they're working to arrange my start times to fit with my daughter giving me transport..  but a bit of a sore throat though, not helped by my wife deciding to make candles, to while away the time... the smell of resin is just killing me.. oh hum.. apart from that I feel good, in a good mood. ready to eat ham + cheese omelette and chips. plenty of drugs to take tomorrow and next 3 days, and some anti sickness, if I need them... so, onward and upward.. pleased with today, I must admit.

oh, and afterwards, on the way out, I had the opportunity to try something, the name of which escapes me now.. but you stick this cling film covered 'lollipop' on your tongue for 1 min, under your tongue for 1 min, then you place this disc like thing on along your jaw, and lips, all for 1 min.. it is hoped that it reduces the after effects... we shall see, and hopefully I'll get the name tomorrow.. 

  • You’re doing well still eating? Keep going. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • You’re doing well still eating?

    yes, ATM still eating.. getting a little tough, but smaller mouthfuls, softer/liquid food.. still going... pain seems to be tolerable also.. but will discuss with team tomorrow, as I don't want to get caught out at the weekend should the proverbial hit the fan.. 

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • You are getting to the sharper end of things now... but you're doing well so just keep powering through. Do your exercises to try and maintain your swallow for as long as you can though don't suffer unnecessarily...  you've still got a ways to go. I found Difflam the best and used it for quite a while after treatment. It definitely provided some respite :-)

  • I found Difflam the best

    yes, I decided to go with that.. so far so good. 

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • Former Member
    Former Member in reply to Beau Chapeau

    Hi Loz

     Murphy's Law...if it is going to get suddenly ugly it usually happens at the weekend...my Macmillan nurse always made sure I had enough pain relief and other meds to cover weekends and Bank holidays...just in case.

    Good luck 

    Peter

  • Day 14.. another good meeting, everyone happy with my progress.. everything is still functioning, just getting prepared for what may come..
    sorting out anti sickness that doesn't clash with my antibiotics, so hopefully chemo won't be as bad this time around.
    all my meds and pain relief being prescribed in liquid form.. just paracetamol and ibuprofen ATM.
    lost a little weight but I did expect it. but mocha fortisips and vanilla ice cream really does hit the spot..
    yeah, happy with that, happy with where I am ATM.. onwards..

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • yeah, happy with that, happy with where I am ATM.. onwards..

    So am I. You’re doing pretty well. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Day 15.. the half way stage.. a terrible night sleep. must've taken steroids a little later than usual..still tasting , still swallowing... but struggling for things to eat.. there's no bulk.. feeling hungry all the time... can't do ice cream/ custard/fortisip every meal... lol..  chicken soup and cheese.. but no bulk.. any ideas? please.. 

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • If you can still swallow then eat anything you like. The steroids are making you hungry. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • can only manage liquid/ soft now.. no lumps.. throat uncomfortable but bearable.. just struggling for ideas.. a very strange transition period.. Thinking

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..