Update on biopsy

Hi Stef61, all i can think is that they have enough information to give you a diagnosis one way or the other.

                                                                             Chris 

Hi Chris

Ive heard back from my consultant and he told me that my biopsy was sent to Christie’s in Manchester. He hadn’t been aware that the hospital were sending there, and this in itself with the addition of going onto a panel in Leeds, added to the delay.
results came back and I have been re-diagnosed with a different cancer! I now have lymphoma? What are the chances of this happening?
I haven’t really looked into what this means as I made the mistake of going straight onto google the last time. I do know that my consultant was happier for me with the results that came back. I am going back to hospital soon to have the peg removed. All I’ve been told so far is that I will have the same amount of chemo (not cisplatin) and that my RT will be less, but not sure yet how many.

I will update everyone as soon as I know the exact details, so please don’t kick me out of this group yet. As for moving to a new group, I am putting this on hold until I know more. 
Everyone in this group has been really supportive and It’s all of you that I want to keep in touch with.

Im quite bewildered by these new developments.

Hi

Glad you have a diagnosis after all the waiting.  I'm sure you are still welcome here in one of the most unpopular clubs in the country!  Hoping that now you have a diagnosis the treatment can proceed at pace.  Good luck going forward.

Many thanks for your kind words and support.

Well, how about that???

I'm keeping my fingers crossed that the diagnosis is better news for you and look forward to hearing your updates.

Take care.

Linda x 

It’s all so confusing Linda, I’ll probably now have to have additional tests in line with the new diagnosis. One day Ill actually start a treatment plan x

You couldn't make it up could you? All the peg tube palava too, now to have it removed.  Doesn't it have to be in for 8 weeks? They refused to remove mine before that.  

Well, at least now you have a final diagnosis & can start treatment & get it sorted!! 

All the very best  

You really couldn’t make it up! I’m not sure about the tube and how long it has to stay in. I haven’t actually used it, and have only flushed it through, morning and night. I still have some infection from it but the nurse says it shouldn’t delay having it removed.

I do hope they get on with it now. One of the hospitals my haematologist works out of, is literally a 10 minute walk from where I live, so I’m hoping they will accept me for my chemo treatment as it will save my wife having to run back and fourth, not that she minds, but it’s better for us.

Many thanks

Yes same re peg tube but they have to make sure it's healed something to do with stomach wall.  Your team will advise obv.

Let us know how you get on with it all even if you join other bunch!!!

X

Sorry Hattieb2017,

I hadn’t seen your post, quite a lot happening over the last few days. I’m having a zoom meeting with the hospital to prep me for having the peg removed next Wednesday. Hopefully all can go ahead, despite still a small infection with it. Maybe removing it will allow it to heal properly.

I have now been told without any doubt that I have Large B cell Lymphoma. I have a meeting with a Haematologist next Tuesday evening and yesterday had lots of blood samples taken, including a virology test.

I am due to have a a Pet scan (not sure when, but soon I’d say) and an echocardiogram. So I will know the staging of the Lymphoma and the treatment I will have. 

At least it’s kept me preoccupied during lockdown!

I hope you are ok and all the other lovely people on here. X