Hi all
Thought I'd give you an update as Harry is coming to the end of week 2 this Tuesday .
Taste has all gone now , saliva is reduced but still there. A couple of ' tender' areas to each side of tongue . His affected lymph node on his neck has visibly reduced though is still palpable . Thursday's seem to be worst the day after chemo . He is shattered- as they give the dexamethasone IV I'm sure this was why he was wide awake for 4 hours too - so was I .We are also sent home with 3 days of dexamethasone.
Very little nausea - we have Maxalon as well as Dex .Appetite has definately reduced - a LOT. He is still eating but we have moved on to milky coffees - made with fortified milk and home made milk shakes full of cream, ice cream etc. It will be interesting to see what he weighs tomorrow plus protein powder, I personally think he has lost weight , I know this is likely.
He has had his RIG in situ for 2 weeks ( tomorrow ) it is not in use at the moment. It has a slight infection so abx are being taken for that along with iodine dressings which I am doing at home. No problems with swallowing as yet. Getting as much caphosol as we can . In fact the hospital are really good at anything we ask for.
Hope every one is doing well and having a good weekend
Lisa x x
Hi lisa
plod on day by day
As you’ve found effects kick in now
I ended up after my first RT thinking, “ Hey this is a doddle” 
despite what I’d read here
The second day my submandibular salivary glands swelled remarkably which brought me down to Earth.
Keeping drinking a lot helps, even while waiting for RT.
Rooting for you both.
xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Lisa
5% I was told before my team started getting twitchy but I guess it depends on your build.
The appetite is an issue. I had to force myself to eat. There were weeks when I couldn't be bothered about eating at all.
Are you getting some aloe vera on that neck immediately after RT? That's the best time to use it.
Keep going 
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
