The diagnosis

FormerMember over 5 years ago

6 replies
84 subscribers
2559 views

Hello everyone

Well after a very long 5 weeks my consultant telephoned me yesterday to give me the biopsy result. Unfortunately the news was not good. I have Low Grade Lymphoma. The tumour was actually on my adenoid. I appear to have kept mine! The consultant informed me that I will now be passed over to an Haematologist who will now be in charge of my treatment. I now have another wait until I’m contacted but not sure in the current climate how or when this will be done. There was a mention of further scans and possibly radiotherapy and chemo. Depending on what is found he even said that the Haematologist might decide to just monitor me. I was starting to calm down a little but have now gone into full meltdown again. Could not face food yesterday, cried and had very little sleep last night. Feels like I’ve gone right back to 7 weeks ago when the tumour was first discovered.

RadioactiveRaz over 5 years ago

Hi Rafferty

breathe deeply you’ve done this once ,we have a friend who also had low grade lymphoma he was monitored for a few years before any treatment he is niw just over 10 years and still hereby ok he has issues but can still ride his bike .He is a private’s type of guy so he wouldn’t dream if going on a forum unfortunately.But remember like we say things move quickly in cancer discovery said so please don’t give up on anything am site this site has its own sub section as well on lymphoma.

take care keep in touch

Hazel x

Hazel aka RadioactiveRaz

My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

2 videos I’ve been involved with raising awareness of HNC and HPV cancers

https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

https://oraclehnc.org.uk/signawaycancer

FormerMember over 5 years ago in reply to RadioactiveRaz

Thank you Hazel

I will have a look at the Lymphoma section. So glad I found this site. Never met any of you but feel I have friends out there who are always there to give advice x

Beesuit over 5 years ago in reply to FormerMember

Hi Rafferty

before you leave for the lymphoma section I want to wish you good luck.
Take heart that early low grade lymphoma is eminently treatable and long long times of remission are the norm.

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

I BLOGGED MY TREATMENT

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

FormerMember over 5 years ago in reply to Beesuit

Thank you Dani

I’ve had a quick look at lymphoma section but they all seem to be specific lymphoma and as I’ve not been given a type yet, I’ll wait a little while. I will also come back on here to update you all on outcome of scans and treatment plan.

Best wishes

Teresa x