Treatment whilst Covid 19 is Around

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Well I had my mask made today and got a start date for Radiation Treatment  which will be for 4 weeks. This was previously planned for 6 weeks, alongside Chemo but with the Covid 19 virus around my Oncologist explained that my immune system would be so depressed that if I got the virus that there would be little chance of me surviving.

No feeding peg, dietitian or speech therapy either so we're winging it. I'm lucky to be getting any treatment at all in these worrying times so I'm grateful for that.

Shelly

  • Good evening Shelly , great news you have got a start date for your radiotherapy, a lot of consultants have been saying the same about the immune system becomes depressed, so it's not worth risking. Maybe because your treatment period is shorter they hope a PEG or feeding tube will not be needed, let's hope so. Hope you found the mask fitting was ok , quite enjoyed it as it felt like a hot towel over my face . All the best for your course of radio, take care. 

                                                                           Chris xx

                                                                               

    Its sometimes not easy but its worth it ! 

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  • Hi Shelly

    I personally know of one other lady who has just started her RT. No PEG for her either. She will get a nasogastric tube if she needs it. I had one at the end of week 3. Takes minutes to put in. Not the most pleasant thing but not painful. I had a lot of nausea with my morphine so did throw  the tube up once. Easily enough replaced after that days RT. 
    The xrays are the mainstay of treatment with the chemotherapy adding 5% to cure rate. The chances of you dying of Covid whilst immune suppressed are much higher so that’s why they stop chemo. 
    Good luck and keep asking as time progresses. There’s a lot of sensible advice here. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi

    Glad to hear your treatment is going ahead.

    As says, you might manage without a tube if you’re having less sessions.

    Who knows? Everything is a muddle right now isn’t it?

    I hope it all goes well for you and please keep us posted. Xx

    Sharon xx

    Hubby - Left tonsil squamous cell carcinoma P16 positive with neck nodes T1N1M0 - 30 fractions of radiotherapy and 6 weeks of chemotherapy, Cisplatin in December / January 2019/20

    Me - Invasive lobular breast cancer - Grade 2, Stage 2 - mastectomy October 2019 - 15 fractions of radiotherapy December / January 2019/20 

     
     
  • Hi Shelly

    ypu can do this lady in my village has just finished 7 weeks radiotherapy  chemo3 sessions she managed without any tube or peg. Get yiur dieticians to give you the Ensure or forrisips high calorie drinks early ie niw then yiu will get used tonthem that’s my advise. I didn’t get them until week 3. Y then I couldn’t stomach the taste of then , now I still have a supply and actually yes folks don’t shout a tip me quite like them ! If I have a bad eating day I have one or 2 . So please give it a try .Lasy above managed to survived on them and pot noodles as well 

    rrally pleased for you 

    so pleased that you are going ahead still at Preston ? 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thanks Chris

    Can't say I was a big fan of the mask making but means to an end eh and I'm just so relieved that they're going ahead with my treatment.

    Thanks

    Shelly

  • Hi Beesuit

    Thanks for the reply and yes they did mention the nasal tube if needed but they are hoping that I can do without. Can't wait to get started now.

    Shelly

  • Hi Drivermason

    Thanks for the reply, yes they're hoping that I can manage without a tube as they don't want anyone in theatre atm.....understandablyWill keep you posted.

    Shelly

  • Thanks Hazel

    I'll take any help I can get so will def ask for the drinks. I start treatment on the 13th all being well and can't wait to start. Hopefully I'll not need a tube but they can put the nasal one in if I struggle.

    Thank you to you and everyone for the support.

    Shelly xx

  • 4 weeks! 
    Lucky you

    My oncologist told me they vastly over cook HPV oropharyngeal cancers. 4 weeks would be so much better for all of us. 
    Wonderful. Keep going You’ll be fine. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • FormerMember
    FormerMember

    Hi Shelly,

    I had 6 weeks chemo and radiation ending 20th December for HPV+ tonsil cancer, no peg or nasal gastric, Personally everything was okay for the first 4 weeks, other than the rank metallic taste from the cisplatin then the loss of taste completely. I just kept on eating as best I was able all the way through. Stay positive you can get through this. I think in a way because we are all so different in the way we react to the treatment they are always winging it!

    Be strong you'll be amazing and get past the rough stuff,

    Kevin