HPV-related SCC appeared in lungs

FormerMember
FormerMember
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I’ve just had some discouraging news. Due to breathlessness post-IMRT following surgery for tonsil cancer I undertook a chest CT scan. Results indicate nodules on my lungs. Waiting for MDT to review, and then likely PET-CT to get more information. Anyone else been through this? 

  • I've not been there, but my thoughts are with you for a good outcome.

    Peter
    See my profile for more details of my convoluted journey
  • FormerMember
    FormerMember in reply to PFJTHS

    Thank you. Unless the rescans show something different, I’m in a cul de sac unfortunately 

  • I had two nodules in my lungs on my first chest CT before radio. They were re scanned three months later. 25% of adult population have them. I hope yours are harmless so good luck. Do you know what they looked like on CT? Did your doc tell you? I guess they are doing a PET/CT because they don’t want to hang around three months. 
    I really hope that breathlessness is something else. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi 

    Oh dear stay strong and like Beesuit said she ok now.

    keep us in the loop it never rains but it pours .

    hope you are seen soon and keep in touch 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to Beesuit

    Thanks. The radiographer said there were ‘multiple’ but I’ve not seen the scans or report. The team is obtaining my pre-surgery scans to see if these were there before or have appeared since. The logic is that had they been there before the initial scan would have been flagged. The ENT surgeon said my chest was clear at the time. So it suggests ‘multiple, modules have appeared more recently. I’m kind of sanguine however it goes.

    Just hoping I can hold out to see my daughter graduate.

  • Stay strong you are a cyclist you can do this ! We are made of strong stuff .

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • I’m so sorry to read this.

    I have absolutely everything crossed for you. 

    Have you thought anymore about taking that early retirement? 

    I’ll be thinking about you often so please keep us all posted.

    Sharon xx

    Hubby - Left tonsil squamous cell carcinoma P16 positive with neck nodes T1N1M0 - 30 fractions of radiotherapy and 6 weeks of chemotherapy, Cisplatin in December / January 2019/20

    Me - Invasive lobular breast cancer - Grade 2, Stage 2 - mastectomy October 2019 - 15 fractions of radiotherapy December / January 2019/20 

     
     
  • FormerMember
    FormerMember in reply to Drivermason

    Thanks guys. I’ll have to figure things out when scans are done. Median mortality is about 2 years, then I have to think about death in service benefit if I stay working, but maybe take sick leave and then use an income replacement policy I’ve had since I was 40. Versus early retirement in health grounds. Lots to think about. 

  • Another one with fingers and toes crossed. 
    I hope your team can find you something to keep you ticking over for years to come. There have been some remarkable stories here with people surviving years on immunotherapy. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge