head & neck

FormerMember
FormerMember
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has anyone else had sinus cancer resulting in eye loss and  facial reconstruction using fibular bone from leg,

I am post treatment chemo and radiotherapy which I had for 6 weeks finished oct this year had pet scan after that came back all clear, but consultant asked for mri scan to make  100 % sure I get the results from this tomorrow on my 6 weekly visit with surgeon,

has anyone else experienced this if so does the pressure from reconstruction get any easer im also awaiting to hear when I get my new false eye I have had terrible weight loss since treatment finished living on smoothies

would be nice to hear from anyone who has experienced the  thing and does things get easier

regards

Jacqueline     

  • Good evening Jacqueline, I have not had sinus cancer so do not really know anything about it, the only reconstruction I have had is a reconstruction of my lower jaw with a bone from my leg. Like most reconstructions, it gets better and easier with time. Weight loss is another problem as none of us feels like eating or cannot eat. Did you have a PEG feeding tube fitted or an NG tube, I have Ensure food supplements prescribed by my dietitian that I put through my PEG. Things will get easier its just some take longer than the other especially bone and skin grafts. Good luck for tomorrow and please re-post if you need more advice or reassurance. Best wishes.

                                                                    Chris x 

    Its sometimes not easy but its worth it ! 

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  • Hi Jaqui, i have recently been diagnosed with nasal/ sinus cancer after a biopsy, yesterday I has a ct scan and today an MRI.  I see a Consultant at Poole hospital on 31 March.  i am terrified, if you don't mind me,  asking, how did your symptoms start and why did you need such radical surgery?   it must have been such a shock to be given such news

    Kind regards 

    Lyn

  • Hi Lyn

    Just wanted to say I had my treatment at Poole Hospital too.  They have an excellent Head and Neck Department there so please be reassured you'll be in good hands.

    Linda x 

  • Thank you Linda, I live about an hour and a half away, so its a bit of a trek, but it is so good to know that you rate the hospital so highly.

    Lyn xx

  • I'm also about a hour's drive away from the hospital  - add an extra 30 minutes + if there's traffic.

    I don't know about the other depts but do know the Head and Neck dept are brilliant.  I was sent there specifically for treatment.

    Linda  x

  • My initial ENT appointment was at Dorchester hospital which is about 17 miles from home, but was told that Poole is where I will have surgery.  How is the parking there Linda?  Dorchester can be difficult to find parking spaces.

    Lyn xx

  • There's an enormous multi storey carpark attached to the hospital.  Only once have I found it full but got a space without waiting too long.  Just make sure you give yourself plenty of time as it takes a while driving round and then walking to the hospital - all under cover. If you have to go every day for treatment you get a vastly reduced parking rate.

    It's much easier than Dorchester.  My dad has frequent appts there and gets there for 8.00am regardless of his appt time!

    Linda x