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I am new to posting because when i started my journey during covid all i found was negativity, but I have a positive story I would like to share. I hope this can help some and not wound those whose outcomes are different. Stay strong, for some there...
Hello and good wishes to all here. I just thought I’d introduce myself as I shall probably be spending some time on here throughout my journey. I’ll try not to waffle too much (although I’m sure I will!) as I’ll probably update my story when time allows...
Yesterday was the start of my second week of chemo (Paclitaxel and Carboplatin) and radiotherapy. I had all my pre-meds but as soon as they started the Paclitaxel my chest went tight, I had difficulty breathing and hot flushes. Obviously it was red button...
I started my journey in June 2024 with a diagnosis of adenocarcinoma T3N0M0. The symptom that that led to my diagnosis was mild but consistent acid reflux. I am deemed inoperable due to underlying medical conditions. So I received definitive chemoradiotherapy...
Hi, My GP has referred me Endoscopy on Monday and today I received a letter to let me know that I’m on the 2 week pathway and to call tomorrow for my appointment. Now I’m panicking as I know this is the cancer pathway. I’m 47 and my symptoms began...
I finished radiotherapy to the oesophagus in the middle of September. For the last 2 weeks of treatment eating hot more and more painful. I have tried various painkilling formulas with little success and I also have near constant nausea and constipation...
My wife has been diagnosed with oesophageal cancer and treatment isn't possible. This is a frightening time. Is anyone else in this position? How are you coping?
I am sorry but I am new to this platform and should have done this years ago I had Achalasia when I was younger (27) I could not swallow for years. It took them so long to find out what I had I was so relieved when I came of the liquid diet. It all seemed...
Hi all I was just wondering what the average time is between finishing FLOT and having surgery? In had my last FLOT on 24th January but my surgery isn’t booked until week beginning 24th March that’s 8 weeks. Have been sent away to get fit (which i am...
My dad has recently diagnosed with cancer of the oesophagus which is crossing over the gastro oesophageal junction, stage 3 and gone into some nearby lymph nodes but not to his liver, he is 86 and still quiet fit, they have told him that if he has surgery...
