Hi - everyone

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I am sorry but I am new to this platform  and should have done this  years ago
I had Achalasia when I was younger (27) I could not swallow for years.
It took them so long to find out what I had I was so relieved when I came of the liquid diet.
It all seemed to go ok until I had an exam (10 years ago) and Im still here. 
I just had a period of chemo which was productive  as the tumour was tiny. I now feel ok again but I just feel sick all the time. My mouth feels like I have been eating straw.
I get checked every 5/6 months which is great but keeps me feeling I am always falling on the end of a cliff.
I know I am OK for now  but I cannot get rid of this feeling as everyone thinks your ok but my head is fixated with this  (hope this makes sense).
I live in Spain originally the UK and the health system here is good.
I am not great at chatting with people but I have been through this for so many years. I have a support group which is great
Please do ask if you want more info as I sadly have a wealth of experience. Even just say Hi. 
I am going on my first holiday in ages and I am panicking. I just want to stop feeling so rotten after the load of pills. It is so hard to describe how I feel as I have had this and achalasia all my life. Any good tips to get rid of bird nest tongue? 
I just feel like I am a chore to allot of people. 
So here is my small rant about me
Please ask if you just want to chat. I have been well for years and it makes you very feel bad. They are moving forward in treatments. I guess I am lucky so far as if it wasn't having Achalasia at the beginning. Getting treated asap is always good whichever way you decide to go. Hugs to all of you x

  • please excuse my spelling as I am a designer which is no excuse as I just cant properly  type Worried

  • Hello Kevin. Welcome to the forum! I'm going to have to Google Achalasia now but it's kind of lucky that this has led to early diagnosis of the cancer. 

    People have recommended pineapple, ice chips and boiled sweets to help with the strange taste in the mouth.

    I think that, from comments I've read on here and heard from friends either living with or who have survived cancer, there continues to be that fear that it will come back. You're not on your own.

    Now you're here, I hope you feel able to open up as and when you like.