r

Sorry that was an accidental repost.

I actually wanted to ask how soon can you have more chemotherapy? I finished radiotherapy in September but my tumour has returned,so I'm pretty worried.

Hi,

Im sorry to hear your tumour has returned. 

Have you seen a consultant regarding the reoccurrence of your tumour? As they should dicuss your next pathway. Did you have chemotherapy prior to radiotherapy?

My dad finished his radiotherapy in October and has just started 2nd line treatment of Paclitaxel in January. 

Kayleigh

It's understandable that you're worried. I hope you get some more answers and quickly x

Thanks Kayleigh,I'm seeing the Oncologist this week but have constant conact with GI nurses who are very helpful.  I just wanted other folks experiences as obviously I'm wondering what comes next. I had some chemo but had to stop as I got sepsis and I had radiotherapy too but reacted badly and in any case I can't have radiotherapy in the same place.  I hope your Dad is progressing well?

Thanks Lozza, it's all so confusing at times isn't it? I had almost given up hope when I posted that but have since been assured by my MacMillan GI nurse that they won't just abandon me.  So I'll see what the Oncologist has to say this week. As I just said to Kayleigh, I reacted badly to both chemo and radiotherapy,so yes,I think I'm right to be worried. x

It is confusing. Absolutely. Why couldn't you have surgery? Radiotherapy was never discussed as an option for Rod. They mentioned it as a possibility if his tumour was bleeding but that hasn't been identified as the cause of his low bloods afterall. 

Today the oncologist said to him that fitting the stent and draining the fluid that filled his abdomen last week is all they can do now, unless he can start eating and get stronger to have chemo. 4 litres came out in the 1st 2 hours! He was virtually begging  to have the fluid drained by Friday but was told it couldn't be done until today. Hence, increasing strengths and doses of morphine. 

I'm relieved for you at the response from the GI nurse. 

Take care,

Lorraine x

I can understand your worry. As that's we all just do isnt it, especially when a treatment doesn't work. I do hope you get some answers and get steered in the right direction.  

Dad is doing well at the moment thank you. We have another dreaded scan on the 30th March, hate waiting for those results. 

He is due to see his oncologist next week and he will be speaking with him regarding his pain in his leg, apparently this is a side effect to paclitaxel. 

We just take each day as it comes. 

I wish you all the best. 

Kayleigh 

Hi Kayleigh,I so know what you mean about waiting for results..impatient and apprehensive both together. I hope the pain does at least mean the drug is working,take care and best wishes to you both x