I am new to posting because when i started my journey during covid all i found was negativity, but I have a positive story I would like to share. I hope this can help some and not wound those whose outcomes are different.
Stay strong, for some there can be a positive outcome.
I was diagnosed with stage 3-4 lower Oesophageal adenocarcinoma and suspicious lymph nodes.. I had 4 Flot cycles, and oesophagectomy and top part of stomach removed followed by a further 4 Flot cycles. it was an erratic roller coaster journey which required a lot of tenacity. Initially I wasn't given hope, but I kept my resolve, lept at the chance of robotic surgery and had many good and bad days in which I was determined to be as positive as I could. I kept treatment notes throughout, something I would advise anyone to do. I didn't join the forum as I could only find depressing posts and few shared experiences from women. Well, it's now 2 years since my op. and no evidence of cancer!
So yes, there really can be a new life rather than just another 'new normal '; words that all cancer patients can relate to. Ok, it is different. I seem to run about 75% efficiency, but it is a life worth living. There are fantastic days and you get used to burping loudly and occasional nausea, but I van garden, exercise, do my art, learn new things and not all of my life revolves around treatment. I feel guilty sharing this now, but I see others here on a similar journey and I can relate to your pain and concerns. I know my cancer will probably return, but I want you to know that for some it will be worth your hard work and dogged determination.
For me today is a good day and I write this in response to a woman who like me asked for some positivity. Yes it is worth it, and I hope you too will be able to look back positively.
SadiW, I thank you for your heart felt response. I totally get what you mean by being able to sleep once you knew what was wrong and got a diagnosis, and then feeling like you can be ready for the future. I had felt ill for some time before being correctly diagnosed, and like you, once I knew I too felt I was able to prepare to fight. I wish you well in your Neoadjuvent treatment to shrink your tumour. It was a similar treatment that turned the tables for me which shrunk my tumour enough to be operated on. I won't pretend it's an easy treatment with all it's side effects but if it works it gives you that chance. All the very best and stay strong.
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