Last Flot tomorrow, CT scan on the 1st Feb

  • 1732 replies
  • 82 subscribers
  • 69328 views

Hello 

I have my last FLOT tomorrow, 4 in all, I have also have 2 rounds of Carbo and Etoposide. I have my CT scan on the 1st Feb as they plan is to operate so I have fingers and toes crossed they I will still be on this pathway.

The Flot has been tough as people say, the Oxy-legs were terrible!! the two week turn around has given me about 3 days of normality. I would like to thank those that offered side effect advice as it really helped me to be proactive with the Meds.

The change for me is  from Oct to early December I was not able to eat food, shakes only. I am now eating normally, I have attempted spicy food, like a curry Heart eyes. I find I need to eat more often or I get like an empty discomfort, not sure what that's about?  My sternum feels sore sometimes also? fingers crossed these are gastral related to the growth but I guess it must of shrunk as I can eat.Grinning

I am so looking forward to some weeks without Chemo but also apprehensive, it will be back to that waiting place, and this is it, which pathway? I wish I had not been told IT was high grade, this bit really sticks in my head!!Fingers crossed

What lovely blue skies I have in the south at the moment, beautiful Sunny

  • Hi Jennie

    I have lots of vitamins and taking in lots of protein but something isn't quite right. I know this first year will and is the hardest and maybe just getting impatient to feel better.

    I watch a little bit of football but not that bothered as cycling and ice hockey are my main sports to watch.

    Happy to help where I can and I get good advice on here too it's making the journey a little easier.

    Best wishes 

    Dean

  • Hi Bob

    Sorry to hear the side effects of chemo have hit you so hard. It's difficult isn't it I know I have been there. It will get better slowly but really feel for you.

    I'm still tired and have no energy and my chemo finished in mid April. Had a blood test today to look for any deficiencies as had low iron before and during treatment so that may not be helping.

    Hope you feel better soon

    Best wishes 

    Dean

  • Hi Dean

    My dietician organised a prescription for “Renepro” a 20ml protein drink (Berry flavour) that tastes bloody awful I’ve tried diluting it I’ve tried it before and after my Jevity plus feed but I can’t get on with it every time I have it I start getting the symptoms of Dumping syndrome so if you want it come and get it as I still can’t drive

    I don’t do football or horse racing so TV wise I’m screwed as it either the Euro’s or Royal Ascot so I find myself browsing through the small ads in the motorhome monthly magazine looking for a bargain l haven’t found one yet 

    like you I’m always here to help but I find all I get is great advise 

    I’ve only got 8:30 hours left tied to this bloody pump I really think this is the worst part about this recovery is ‘Abbott” freeco pump whirring away all night and I end up clock watching just waiting for it to finish Sorry moaning again

    Goodnight Best wishes 

    Alasdair

  • Good morning Dean

    Hope the bloods gives some indication so you can feel better. Do you watch Oxford play ice hockey? 
    What a glorious day SparklesSunflowerSunglasses

  • Morning Alasdair 

    Yes the protein drinks are not nice are they. I have ProSource and it's a challenge every day to drink it. Also taking Creon which is to help me absorb food and the big tablets are hard to get down as well but is has to be done. I don't like tennis or football really but not much else on really. Tour de France not far away now and the Olympics so it will get better.

    Hope you feel better soon

    Best wishes 

    Dean

  • Hi Jennie 

    Should get results later today to see what is going on.

    I watch NHL ice hockey , the Toronto Maple Leafs are my team. They got to the play offs this year but lost 4 games to three against Boston Bruins.

    Yes really nice day today so going out in my garden to potter

    Hope you are feeling ok

    Best wishes 

    Dean

  • Hi Dean,

    How did you get on today?

    Cool Blue

  • Hi CB

    No results back yet, it's clinic day at the hospital so they will be very busy. If not today should hear tomorrow. Hope you are feeling a bit better

    Best wishes 

    Dean

  • Hope it's all now Dean .

    Best wishes

    Vonn xx

  • Sorry should say hope all is OK Dean xx