Reoccurrence at first scan

HI Suzuki750

Sorry to hear that the scan hasn't shown what you'd hoped. 

Let's start by clearing one thing up- feeling sorry for yourself is allowed and is not selfish. This is a huge thing to process so please don't be too hard on yourself. Feel all those emotions as by feeling them and expressing them you are processing them and that's a positive.

A GBM journey however long it lasts is a rollercoaster ride for all involved. Re-growth is one of those twists and turns on that rollercoaster ride sadly. 

In our case, G too was physically fit and healthy. He was 50 when he was first diagnosed and a marathon runner. After  surgery and the initial 6 weeks of treatment, he declined all further offers of chemo. I had to accept that that was his decision to make and not mine. To him quality of life was more important than quantity. When fresh GBMs started to show on the MRI he was again offered chemo and again he declined. 

I guess what I am trying to say here is that whether to accept further treatment or not is your dad's choice to make. Hard as it is to accept, you need to be led here by what your dad wants and can cope with.

This is a journey that needs to taken one step at a time. 

This is a safe and supportive space as you know so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.

It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

sending love and light and hugs

Wee Me xx

Hi Suzuki750

My late husband was 50 when diagnosed. He had surgery and went thru 6 weeks radio and chemo. Post that he was put on monthly TMZ which he took for 3 months. All was well till then but after 3 months his scan showed fresh growth in the same area. He was offered a 2nd surgery and he did go ahead with the surgery. This entire journey went on for close to 2 years. As WeeMee mentioned it is a rollercoaster ride and each person reacts differently. So do not conclude anything based on what we have gone through. There is nothing wrong in how you are feeling. I hv been through this journey and felt the same. 
First and foremost is give yourself some time. Step out and share your feelings with someone close to you. There is nothing wrong in feeling sad/angry/.. You can reach out here for any questions. 
Make a list of questions that you want to discuss with your dad’s doctor when you meet. 
take care

Take care of yourself.  It's extremely hard to come to terms with what is happening. I think they will tell you the best option or options and hopefully that will be an option you are happy with. Being raised at the MDT is a good thing and hopefully you hear the results of that soon. Take care x

Thank you everyone for taking the time to reply. The oncologist called today and confirmed that it is new growth and offered him PCV trt. Dad asked what the time frame would be if he didn’t take PCV and they said it would be very quick. He has opted to try the PCV and see how he gets on. I hope it can keep it at bay for as long as time allows.

To look at my dad you would not know there is anything wrong with him as he is so fit and well. And for me that is so hard to get my head around. 
I’ve had a constantly wet face from crying all day!

Thank you for replying and wishing everyone all the best for 2026 xx