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My wife has deteriorated significantly in the last two weeks, so much so that I couldn't cope and she entered the hospice in order to try and stabilise her. This has been largely successful but there have been episodes when she has been highly agitated...
My husband has now a recurrence after 2yrs 7 mnths and has a regrowth in the corpus callosum,he had lomistin a few days ago. Over the past few days his behaviour has become increasingly strange.His short term memory seems non existent and inaccurate...
Hi all, I am currently having dendritic cell therapy for my glioblastoma near Munich. This treatment was delayed because my 21yr old son had a bad crash. (he has his own Glioma and he had been seizure free for 18mth and had just got his licence back...
Hello everyone I've been out of contact for quite a while, but I've been a regular lurker. My dear wife of 34 years died three weeks ago. She lived pretty much exactly three years from diagnosis, and she really did live. Through all the treatments,...
I'm Bob and I have married to Elaine for 47 years - we met as teenagers, got married (me 21, Elaine 19) and despite some ups and downs, we've had a great life together. Then in late May 2024 she had a seizure out of the blue. Initially diagnosed as a...
I often post on here every few months when things start feeling heavy and I guess here I am again. My mum was diagnosed with grade 4 GBM in April 2023 age 55 and was given a prognosis of 2 years. Here we are almost 3 years on - it’s hard to beleive! ...
My husband has now a recurrence after 2yrs 7 mnths,he was doing so well, but not unexpected . He was off chemo for three months and a butterfly tumour has grown in the Corpus callosum where it is inoperable He's memory is very poor although he's able...
37 months after diagnosis at the age of 52, my wonderful husband took his last breath on Tuesday at home with his dear family around him. He had rapidly declined over the last 7 weeks losing mobility completely, speech and left with very little cognitive...
Hubby 52 diagnosed GBM4 Nov 24 no operation due to location. 6 months ago had speech and could walk independently with a stick. Last month things have declined with speech to yes and no and shouts due to frustration as when tries to talk cant understand...
Hi Just wanted to say hello and reach out to people who have or are experiencing similar issues to my own. I am 51 years old and have a confirmed diagnosis of stage 4 Glioblastoma. It has all happened so quick even now it’s hard to get our head around...
