My husband has now a recurrence after 2yrs 7 mnths and has a regrowth in the corpus callosum,he had lomistin a few days ago.
Over the past few days his behaviour has become increasingly strange.His short term memory seems non existent and inaccurate.
He had a laptop on his desk my son set up for him because it wasn't good for him to have his work laptop.He unplugged the new laptop a few days ago and it was just sitting on his desk.
He went upstairs last night and I found him moving his mouse around but the laptop wasn't on and he said he was working on some CAD files.Later on he told me he was landing planes
It's just very hard to see, What's others peoples experience?
Hi Slh
we had many strange experiences with G throughout the 3 three so I can empathise with the out of character behaviour.
If this change of behaviour has come on suddenly I would suggest giving the medical team a call and explaining the change to them. It could be something simple like an infection that's causing the additional confusion.
G's short term memory all but disappeared quite early in his journey and as you describe was inaccurate at best That in itself is hard to live with day in day out. Weirdly he could recall accurately events from over 20 years or more far easier than he could things that had happened 20 minutes before. Different areas of the brain required I guess. What we did discover was hat if he couldn't recall something recent, if we waited a few days and asked again occasionally it had found its way to the longer term memories.
A GBM journey is a rollercoaster ride and takes its toll on all involved.
Sending you a huge virtual hugs and infinite patience.
love n hugs
Wee Me xx
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Hi Slh,
I am very sorry to hear about your husband’s out of character behaviour. My husband exhibited some strange behaviour prior to his initial diagnosis, which was resolved by steroids, and which didn’t really recur to any great extent after his surgery.
After recurrence in his corpus callosum, he experienced rapid cognitive decline. He went from being a voracious reader, to lacking the concentration to read for anything other than short periods, to not reading at all. (This was particularly heartbreaking to watch, as reading manuscripts had been central to his line of work.) Similarly with viewing habits, he went from enjoying challenging content to non taxing, to nothing at all. After this point, he just spent more and more time sleeping.
It is all just dreadful. I hope you will receive the support and advice you need from the health professionals treating your husband.
Continuing to think of you.
Ax
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