37 months after diagnosis at the age of 52, my wonderful husband took his last breath on Tuesday at home with his dear family around him. He had rapidly declined over the last 7 weeks losing mobility completely, speech and left with very little cognitive function. Its been so difficult to watch but the Pallative Nurses were Angels and helped us so much. It was such a surreal experience, he started struggling to swallow on sunday so the syringe drivers went on and he mainly slept and was rapidly breathing for the last few hours until he slipped away. He had changed so much from the husband I had known almost as if it was two separate people. Very early stages of our grief but we have been blessed with so much love and support. I will dearly miss him forever and wish he had not gone through this, I feel very numb but i guess I was prepared to an extent aftet reading so many stories. This is the cruellest disease but we got through it somehow, sending love and light to all xxx
So sorry to read this but also relieved that his suffering is over and that he passed with his family around him. I totally understand what you mean by the changes in him as the journey progressed. I felt exactly the same when it was G. Hold onto the good memories of the man you fell in love with. Please be gentle with yourself over the coming days/weeks/months and know that you are not alone. We are still here for you.
Sending healing love and light and hugs
Wee Me xx
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