That’s right. Painful this morning knowing he didn’t let us onto this trial (to be fair the nature of the tumour wasn’t right for it and that’s ok) but hopefully good news for many x
I heard this doc on the radio a little while ago. Obviously its great news there may be a new treatment option. He seemed to say there are 14 spaces and three are taken. I really wish these medics werent all doom and gloom! This little ray of sunshine said its a terminal diagnosis right from the start and patients have 9 months!!
Hi Dek we have the same doc and I'm wondering whether he might suggest this trial, as my wife now has small recurrence. What was the issue about you not getting onto the trial, if you don't mind me asking?
I hear you about him btw. How did he change when you went onto palliative?
Because the tumour for us is kind of small bits everywhere it wasn’t growing in one large ball although now it’s gone crazy it is but we weren’t suitable because its a beam that goes directly into the tumour and with us you couldn’t properly target it
I'm so sorry to hear that. What I don't understand is exactly your issue: how this treatment helps the fact that the disease spreads through the whole brain at recurrence. Thanks for your reply. Do you still see the doc or are you now at the next stage? Thinking of you.
We were handed to palliative 18th sep but he has largely improved a lot and isn’t rapidly going down hill anymore so I’ve asked for meeting today … will let you know how we get on
Thank you. We're at stage of small recurrence and change to lomustine. If we did get a place on this trial I think it would mean coming off chemo so we'll have to see how things go. Thankfully my wife is doing well atm no big deficits. Good luck and thanks for your replies x
