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Hi all, just letting you know that Steve passed away peacefully at 2.43 am on Monday morning. I was beside him, and it was actually quite beautiful ️. I now have to try and rebuild my life. Steve was a beautiful, funny and intelligent man and has left...
Hi Thanks to all who replied last week when I posted about my brother. He's still in hospital, nothing has come of potential nursing home yet. The last few days have been horrendous to say the least. He doesn't want to see anyone and gets really...
Good morning my lovelies, just letting you know that Steve is on end of life care. He's lost the ability to swallow and has a syringe driver in place. He barely resembles the man who I've been with for over 25 years and his passing will absolutely break...
Hello everyone i was diagnosed this week with Glioblastoma, and it was a shock, to say the least! They can’t do radiotherapy or operate to remove it as it’s too BIG and right in the centre of CNS, so causes issues with left and right communication....
Hello, Mum was diagnosed with a high grade glioblastoma in February this year and was advised against chemo and radiotherapy and given a 3-6 month prognosis post op. Despite not having had any treatment, she has started to lose her hair, which is...
I type this with a very heavy heart... My gorgeous 43 year old wife was diagnosed with a GBM Grade 4 last Christmas and had surgery to debulk just two weeks into the new year. Radio & Chemo x 30 days followed from February to the end of March. Following...
Hi, how do people cope with the ongoing challenges of GBM? Its just so tough, I know any illness is tough but this one because it changes the personality and the person is just something else, its the most horrific illness and soul destroying for family...
Hi all Just wondering where we are in the journey? My brother had been in hospital almost 6 weeks now. Tried to get him home but was back in within 24 hours. He sleeps most of the time, wakes for food and toilet basically or if someone visits. ...
Hello all. My husband has just been diagnosed with a right temporal glioblastoma. We thought his symptoms were probably due to a silent stroke, but we were wrong. He's coming to the end of his 'weaning' dose of steroids (which have been a wonder drug...
My mum - diagnosed in Feb this year - is nearing the end of her life. This is unfortunately not something I am unfamiliar with as we lost my MIL to Gallbladder cancer after a 12 month battle ending in June of last year. So I am familiar with the signs...
