Chemo

Hi Dayby Day,

I am really sorry to hear about your husband and your current situation. I lost to my husband to this horrific disease eight months ago so can fully empathise with what you are going through at the moment. You are right: it is tough! You keep going, coping with increasingly difficult symptoms, because there is no choice. You do cope; you will cope.

My husband had a recurrent tumour in an inoperable site, at which point he was scheduled for 6 cycles of 3 chemotherapy drugs, one of which was Limoustine. He only managed two of the six cycles. The taking of the drugs themselves posed no problem; he tolerated them well. It was his rapid deterioration generally, which caused the cessation of treatment.

I can’t comment, I’m sorry on any private treatments. In our case time ran out for us. I hope someone else can respond to you about their experiences in due course.

Wishing you and your husband all the best.

Ax

Sorry I can't answer your questions but yes it is so tough. Each stage is so different and like you say your loved one has changed so much. We went to see a consultant in London who also works at King's. He explained options (for us not many) but I felt better knowing we had looked into everything.  It stopped me having to keep searching. Thinking of you x