Hello,
Mum was diagnosed with a high grade glioblastoma in February this year and was advised against chemo and radiotherapy and given a 3-6 month prognosis post op.
Despite not having had any treatment, she has started to lose her hair, which is devastating for her. 25 weeks post op she is more tired and slower to respond/react.
The only time my siblings and their children are available to have all grandchildren under the same roof is the last weekend in August, which I fear will be too late for mum.
I guess I'm just sharing as I'm hoping someone will say they had the same timeline and their loved one made a further 6 weeks....!
Hi Chris75
sorry to hear about all that has been going on with your mum.
I supported my late husband throughout his three year journey and have a love/hate relationship with timelines. G blew them all out of the water.
Try not to focus on the number of weeks/months the Drs have mentioned. These timelines are best guesstimates based on published averages and no one is average here. That said, your mums Drs are the best people to ask about the feasibility of your planned family gathering. It might be a slight medication tweak can help make sure she can enjoy the day.
I'm wary of mentioning too much about G's timelines but we were passed into the palliative care phase of his journey at the end of Feb 2023 by the oncologist who said he had a few days, maybe a couple of weeks. In Aug 2023, the hospice Dr gave us the same timeline. G passed away peacefully at the end of Oct 2023. I guess what I'm trying to say is that this journey takes as long as it takes.
This is a safe and supportive space so please reach out here anytime. There's always someone around to listen who gets it and I'm sure some of the others will be along shortly to share their experiences and words of wisdom.
Sending you love and light and hugs and lots of positive energy for a successful family gathering.
Wee Me xx
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