People of any background, gender identity or sexual orientation etc can be diagnosed with cancer. Please be welcoming and supportive when talking to others.
We keep this a safe space for everyone. To find out more, take a look at our Community Guidelines.
Hey guys, I'm 42 from Melbourne, Australia normally fit and well and back in January this year I got a pretty sudden onset excruciating Abdominal pain that landed me in the emergency department for the night. They treated it with some heavy pain meds...
Hi all, I was diagnosed with FL grade 3 stage 3 last july and was on Active surveillance for six months. I had a cat scan in February that showed that my disease is progressing but still considered indolent. My team advised me to enter the S2308 clinical...
Dear all, A few months after my first course of chemo- and immunotherapy, my follicular lymphoma returned. I have now started a second, more intensive round of treatment (obinu and benda). The first course was physically harder than I had expected,...
Hi Everyone, Hope everyone is good, I am new to this as have just been advised this week after a biopsy that I have follicular lymphoma, I have the following day had a pet scan and been show the results which means treatment is required starting within...
Hi. I was diagnosed with FNHL 9 years ago and put on watch and wait. For the last 3 years my haematologist has been trying to get me to start chemo. I have never had any B symptoms (weight loss, night sweats etc). Apart from fatigue I feel ok. Recently...
Hi Everyone, I was recently diagnosed follicular lymphoma and was truly grateful to start R-benda treatment I am doing okay. I am early on in my cancer management but I wanted to know if I am not alone as to the feeling of that although I feel very...
Hi everyone new to the group and new to on line chats. I'm Iris I was diagnosed with low grade NHL in April 2024 and had 6 months of Chemo. Rchop. I'm now on 2 years Maintenance therapy with Rituxmab and have just gone back to work after 11 months off...
Hi, I wonder if anyone on the forum has had experience with Rituximab and how long they were able to stay in remission with it please ? I am referring to just the induction Rituximab and not the ongoing maintenance but as much info as possible would...
Hi had my first chemo on New Year’s Eve 2025……I’ll certainly never forget that new year eve and wasn’t the party I was planning to have!! 2nd chemo last week, good and bad days but sleep is THE biggest problem. Tried every kind of CD sleeping pill but...
I'm 74 and have worked very hard at keeping well I ride my bike hard 80-100k/week Swim and am walking the Camino Santiago in stages. Just finished my last 200k stage in October that's it 80% done just one stage left to do. I manage the 20-30k stages but...
