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I’ve just been told that I will be having RCHOP , and that I will loose my hair . I live in Essex , and I’ve heard there’s a good wig shop in Southend . Wondered if anyone has experience buying a wig , is there a discount code ??? thanks mandy xx
Hello there, My dad unfortunately had the diagnosis of FL following a blood test back in October. Stage 3 - he had extreme breathlessness and his blood counts were all over the place, almost no RBC and hundreds of WBCs. He had his first chemo treatment...
Has anyone here had a methylation test , I will explain . Ive had my cancer since 2019 and had chemo yet it wiped me out , first day 5 reactions and from then on I didn’t understand my body or what was going on around me . My world vanished as I knew...
Hi again, I'm not really new here, just rusty. I had a diagnosis of Grade 4 FL about 6 years ago, completed 6 rounds of bendamustine and rituximab just before the pandemic. No maintenence, partly not needed, partly because of severe allergy to rituximab...
Hello everyone, I certainly didn’t think I’d be writing on here, but here I am. I am 31 years old and got diagnosed with follicular lymphoma today. I have a beautiful 16 month old baby and I am generally a very fit and healthy person. I had a lump on...
Hello. 6 weeks ago I had my diagnosis of low grade, stage 3 follicular non-Hodgkin's lymphoma. I am still finding it so hard to process and accept, partly because I feel absolutely fine. I was widowed nearly 5 years ago and became a single parent to...
Hi, I have recently been diagnosed with stage 3 FL I am 48 years old and am otherwise healthy. I have a large swollen lymph node on the left side of my neck, just below the jaw line , which is how the FL was discovered. I am advised it is grade B and...
Hi all I'm nee to the group was recently diagnosed with low grade non hodgkins lymphoma follicular last Wednesday I had a pet scan my follow up appointment was 18th March however this morning I had a call bringing my appointment foward to tomorrow I'm...
Hello, Im new to here, living in Inverness, have been on w and w for follicular for two and a half years. However the time for treatment has arrived due to swollen nodes pressing on my vena cava inferior. I had my first R Benda last Monday, so I think...
Hi everyone, New here. Recently been diagnosed with non hodgkins follicular lymphoma. Stage 2 and symptomatic. Had numerous tests/scans. Recent Pet Scan on Wednesday. Bit overwhelmed with it all. Don't think I've really processed it at all fully.
