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Diagnosed with Follicular Non Hodgkin's Lymphoma December last year Treated with obinutuzumab/bendamustine: for three months although I felt much better PET scan showed increased Lymphoma activity particularly in bones treatment terminated Enrolled on...
Hello folks I had a diagnosis of NHFL Stage II (pelvis) two weeks ago. It took 11 weeks from the GP requesting an X-ray to getting the diagnosis (via the 2WW cancer pathway). The consultant haematologist has confirmed that first line treatment will...
My wonderful husband was diagnosed with Stage 3AS Grade 1-2 follicular lymphoma six weeks ago. He's had four rounds of Rituximab monotherapy and we're due to go for an appointment with the haemotologist this week and I'm so nervous to hear how they think...
Hello. I hope no one minds me posting on this forum as I do not have lymphoma however a very good friend of mine has recently been diagnosed with stage 3 NH follicular lymphoma. He is due to start chemotherapy shortly and id like some advice on how...
Hi everyone, I’ve have a positive update. My haematologist has confirmed that my follicular lymphoma is localised at the top of my leg so the plan is to have radiotherapy with the hope of a cure I also had a fertility preservation appointment this...
Hello All, Well I didn’t think I would be doing this but life is life. I was diagnosed with FL and started OCVP treatment in May 2025. Had my PET scan in November and was given a Deauville score of 3 which was great news. I Started Obinutuzamab maintenance...
I'm 29 and received my diagnosis two days ago. I was by myself when I was told, put on a brave face but cried in the car. I have a PET-Scan in 2 weeks and have also been told my CT picked up a few spots in my left breast so also require a mammogram...
Dear forum members, I have just been diagnosed with a relapse of FL and looking for some advice/thoughts of others who have had specific treatments. A bit of background - I had stage 4 FL in 2020 in lockdown (not fun), I was on this forum then but...
Hello Is there anyone on this forum who is on a clinical trial for Follicular Lymphoma? K
Hi everyone Iris here. I'm coming to the end, 2 to go of my injections then 2yrs of maintenance therapy has finished. I'm feeling apprehensive about my follicula Lymphoma re surfacing. Has anyone experienced this. Many thanks
