Hi all, I was diagnosed with FL grade 3 stage 3 last july and was on Active surveillance for six months. I had a cat scan in February that showed that my disease is progressing but still considered indolent. My team advised me to enter the S2308 clinical trial. Is anyone else in this clinical trial? I start it on April 6th!
Hi Hsalaf and a warm welcome to the Community and sorry to hear about your Lymphoma diagnosis. I am Mike and I help out around our various Lymphoma groups.
I don’t have Follicular Lymphoma but I have been on my Lymphoma journey for coming up to 26 years first diagnosed way back in 1999 at 44…… when my first rare (8 in a million) ‘incurable’ but treatable type of slow growing Low-Grade Cutaneous T-Cell Non Hodgkin’s Lymphoma (NHL).
I eventually reached Stage 4a in late 2013 when a second, also rare (4 in a million) type of very aggressive High-Grade Peripheral T-Cell NHL was then presenting so although my Lymphoma ‘type’ is different I most definitely appreciate the challenges of this journey rather well having had 750+ hrs of chemo, 45 radiotherapy zaps and 2 Allogenic (donor) Stem Cell Transplants between Oct 2013 and Oct 2015……. so I do know in part he journey you are on ….. but I will say that I am now 10+ years out from my last treatment, turned 70 back in Nov and I am continuing to live a great life.
I see that you have already started to interact in other posts and let’s see if any member is on the S2308 clinical trial.
Are you in the UK….. if you are what hospital are you being treated at?
Always around to chat.
