Iris melanoma

  • 2 replies
  • 11 subscribers

Hi hope you are all well I was diagnosed with iris melanoma Christmas eve and I had proton beam therapy in January I am suffering with my eye now I can only half open it I have lost my bottom eyelids I was wondering if anyone else has had the same symptoms 

  • Hi  and a very warm welcome to the online community

    I'm sorry to read that your were recently diagnosed with an iris melanoma and that after proton beam therapy you are having problems with your eye.

    My melanoma was a skin one so I don't have any direct experience to relate I'm afraid. I assume that your hospital team are aware of the problems you are experiencing?

    I'm tagging and into my reply as they have been having proton beam therapy. I'm hoping they might be able to pop on and tell you about their experiences.

    It would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.


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  • FormerMember

    Hi Shelly , I had treatment the first week in March , my eye strangely looks a lot smaller than the other one since having this but think that was from swelling , it still looks puffy and times and sometimes gets very sore and irritable even with drops , I’ve also noticed that when I tired it seems like it’s flickering a little . Didn’t lose eyelashes tho .  I would add a picture but not sure if you can on here .