Hello, like many others here have said, getting diagnosed with eye cancer was weird. I was very calm about it. I did a lot of research in the month between urgent referrals and knew what kind of options were likely. I think my positive head had convinced myself it would be benign, or I had failed to absorb the liver connection because that was too scary to contemplate.
It was the day after when I found myself unable to talk and deeply distressed. My husband and I went to Maggie’s and he had to talk for me, which is not a normal state! I am not sure how things would have gone if Maggie’s hadn’t been there. Within a few days things had improved and while this is a rollercoaster of a diagnosis (not so bad, shit really bad, quite small really, shit does that even matter, reassuring to have time off to get fit, shit scans for the rest of my life). I dissolve in to tears if anyone mentions the children. I’m “fine” now, a lot more accepting of that rollercoaster and the uncertainty we all have in our lives whether we have a “big beastie” (as someone here called it, brilliant!) or not.
i had markers put in last week and will be going to clatterbridge for a mask fitting on june 11 then proton beam treatment june 30. Anyone else?
Post op my eye recovered well but a week in I am squinting at things and wondering “what is normal” so about to do some searching on this forum. Thank you.
