Chorodial melanoma diagnosis this week

FormerMember
FormerMember
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Hi,

      My name is Jo & on Tuesday 4th Jan 2020 I went for appointment at Moorfields in London & after all the tests was told it was cancer Worried I will be having my left eye removed within the next month.

Be nice to speak to others who have gone through this and had an eye removed.

What should I expect? Is it easy to adjust to only 1 eye? 

  • FormerMember
    FormerMember

    hi jo sorry to here what you are going through ,i had my right eye removed because of cancer on the 4th of november 2019 operation went well i had a tempory eye put in on the 28th december it gave me a lot more confidence i go back on the 4th of march for an impression to have my perminent one done which sould look exactly like my eye im still finding it hard to come to terms with having one eye i do find things difficult to manage which is normal but things should get more easy with time its early days yet can take months so my consultant and nurse told me for my brain to adapt to the changes it is frustrating but time heals im still healing you will be fine good luck 

  • FormerMember
    FormerMember in reply to FormerMember

    Sorry to hear you have been through this (big hug) glad though you are now slowly healing x 

    My boss asked me yesterday if I knew how long I would be off work, they will need to arrange cover....told her I have no idea, but from what you say it could be longer than I maybe thought lol.

    So glad i have this place to get advice n support etc.

  • FormerMember
    FormerMember in reply to FormerMember

    i do not work ill be retireing next year so i dont have that to worry thank god. have you had the operation i think you should go on how well you recover and feel after the op weather you feel strong enough mentaly and physicly but dont try to rush for the sake of getting back give yourself enough time to start healing the younger you are i should imagine you will heal a lot faster i would ask your boss if they could give you at least 4 weeks if you can to get back on your feet it can take time to adapt to one eye .it got me so annoyed and feeling depressed like why has this happened to me sort of thing  which is normal i guess but i am such a worryier  let me know how you get on x 

  • FormerMember
    FormerMember in reply to FormerMember

    I'm 51 and will be having operation within  the next month....just waiting for appointment.

    Spoke to head office and I estimated maybe 6 weeks off work, but did say it depends on how I do with recovery.

    Guess i will find out in a couple of weeks lol.

    Phase 1 was diagnosis , phase 2 is operation and phase 3 is recovery.

    1 phase down n 2 to go Laughing

  • FormerMember
    FormerMember in reply to FormerMember

    6 weeks is good ..yes it does depend on how you feel after the operation .i stayed in one night then out next day had my follow up appointment about 3 weeks later all went well  the operation takes about an hour you will be fine let me know how you get on after the operation good luck x   

  • I had my eye removed to the same cancer some 32 years ago. I didn't find it difficult to cope with living with one eye but there are still things I can't do like playing table tennis. I used to be quite good but with one eye it's pot luck whether I hit the ball or not. I also am still careful pouring a glass of drink because it's easy to miss the glass. But you learn, with mistakes, to do these sorts of things slightly differently and they mostly don't matter anyway.

    After all this time my eye socket has shrunk a lot. They don't usually but mine has so I'm waiting to have an op to use some fat from my bum to fill out the socket. Then back to Moorfields for a new eye to be made. Good luck.

  • FormerMember
    FormerMember in reply to Londoner12

    Thanks.....it is encouraging to know others who have been through what I am about to.

    I am allowing myself 6.weeks but if i am functioning properly in about 4 weeks that will be great. 

    Thankfully have one of those kettles that i just put cup under, press button and the right amount of water goes in Grinning no chance of burns which is good lol 

    Hope they sort your eye for you......did make me laugh though having fat from bottom used to fill out the socket .amazing what they can do these days.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi, well tomorrow 26th feb is operation day ScreamSobStuck out tongue winking eyeWink 

    Have to be at moorfields for 7.30am, so got alarm set for 4am .

    So far I have still not cried about my diagnosis but that may happen tomorrow once I arrive at hospital or may happen after the operation !  Bag is packed n ready and just want it over n done with now......eye sight in last 2 weeks has got worse and reading is getting tricky as letters jumble up, so will be glad to have just the 1 healthy good eye.

    All being well I will be back home Thurs 27th and can soon do an update on here  on friday or sat depending on how I'm doing Grinning

  • Trust it all went well and you are at home healing. 

  • FormerMember
    FormerMember in reply to Londoner12

    hi ,i had my right eye removed 4th november iv noticed now all the swelling has gone iv got that sunken  look with the socket .is that what they do to fill it out i hate the look of it