I’m 47, and about 25 years ago the opticians discovered a “lump” in my eye and I was referred to hospital. I have had my lump checked on an annual basis ever since but on 7 December at my routine appointment I was told that my lump had grown. 11 days later I was seen by Professor Heimann at St Paul’s Eye Hospital and received the devastating news that i had cancer. Wow….! What a rollercoaster Christmas I have had! I’m scheduled for Proton Beam Radiotherapy week commencing 12 February but I am really struggling to come to terms with it all. I keep getting overwhelming feelings of anxiety and worry that my whole life is going to change forever. How do you ever come to terms with a cancer diagnosis? Has anyone else undergone Proton Beam Radiotherapy? And if so, do they have any long term effects from the treatment? Thank you.
Hi Nikki
sorry to hear of this. It’s a huge shock initially. I was diagnosed 18 months ago in Liverpool and had plaque treatment. I’m afraid I can’t advise re proton beam. I’ve lost some eyesight but not too bad. I have 6 monthly liver scans and am having one today. I can say that you do adjust from where you are initially and resume your life. That said, it never leaves my mind (mainly re liver metastasis) but it’s more a passing thought for the majority of the time. You will adjust certainly from where you are currently.
good luck
paul
Thank you Paul. Good luck with your scan and best wishes for future health.
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