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Hi . I came on this site because although I've had CLL for 4 years I'm still on watch and wait . I get tired but only feel really ill if I overdo it or get stressed . But my main problem is that I get like tingling and restless legs feeling at night mostly...
Hi everyone, I’ve been living with CLL for some years and it was only in 2023 when I had been diagnosed with mycoplasma pneumonia that I was informed I also had CLL. I have ongoing joint pain, severe swelling of my glands in my throat etc. but was informed...
Have been informed that I have awaiting appt in December to talk to haematologist. Very few symptoms except tiredness. Picked and diagnosed as has had elevated WBC for four years Not too sure what to do. Regularly do exercise
Hi all, Terence here [rimshot] - 58 years old this coming Saturday, diagnosed with CLL last year, watch 'n' wait and all that. All a bit numbing with the diagnosis, some evenings are a bit sleepless with the anxiety etc. It's not too bad during the...
Having been diagnosed with CLL two years ago, I have been having three monthly blood tests and consultations with my haematologist .... until now! My blood tests and general condition has been stable so far, so my next check up is now extended to six...
Hello everyone I was diagnosed with CLL start of last year and have been on "watch and wait". I had follow up this week and looks like may start treatment end of year. The Consultant has been great and explained things and listed which drugs may use...
Hi all, I just wanted to share that, I am currently 8mths post immunotherapy treatment and have been informed that at present I am in remission. I know this is not a cure and it has taken me a couple of weeks to absorb the news. Hopefully I can relax...
I am on my very last week of oral chemo meds. The past year has been rough, but this past month I've felt worse and worse. Had a emergency appointment with my haematology nurse today, bloods taken and a chest x-ray because of constant heart palpitations...
Hi My husband has just been diagnosed with CLL. He has an enlarged lymph nodes in his neck and abdomen. The haematologist said they would have to start treatment as the lymph node in his neck is quite bulky. He said my husband, who is 82, would be able...
It seems a bit quiet here.
