Had Cll for thirty years, in the last 8 years I have lost three stone in weight, Any ideas how to gain weight. I eat very well, I'm 77yrs old. Docs say my CLL is stable. Any ideas how to gain weight? I am also aways very tired. Thanks Smudg...
I was diagnosed with CLL when I was 47, now nearing 60 & have just started treatment, taking pills, I'm always picking up every little infection going, getting to the stage where I hardly go out!! Does anyone know if I can claim any benefits. My anxiety...
Hi, i was diagnosed with active CLL at the start of July and was put straight into treatment, i had probably had it years without realizing it., hadn't been to see a doctor for 14 years. It was only picked up in a random blood test because i had an infection...
I hope everyone is as well as they can be I was just wondering how people deal with the cold?
I would love to engage with others for support and give support too! I’ve recently been diagnosed with CLL although my symptoms don’t apparently match up with the biopsy diagnosis as I shouldn’t be feeling so unwell apparently so I was sent for a bone...
Hi all, got told i had cll in feb, since then im finding it hard to cope with the breathlessness pain in legs and stomach on watch and wait, but finding it hard to cope with all these symptoms every day brings something new, these past couple of months...
Hi I've just joined and about to start treatment. i have opted for Ibrutinib. Has anyone else taken this? If so, how was it and any advice. Thanks
Hello, I was diagnosed with SLL during the summer and given two courses of Prednisone. It worked remarkably well and my haemoglobin levels returned to normal. Several weeks later, I started to feel lethargic and down. Soon afterwards I developed severe...
Hi all, So my wife of 33 was diagnosed with CCL in June 22, we have had the usual blood tests for her be put on "watchlist" so we have our next round of blood tests this November, I'm always telling my wife I'm positive of the results but to tell the...
Hello I'm just starting out on a journey not knowing what comes next. I have had 7or8 years on "watch and wait" so I ignored CLL and a recent bout of COVID stirred it up. I'm up in Lincolnshire anybody out there? from my area. Are there any support...
