Hello i am awaiting diagnosis for CLL , D day is next week after 3 week wait so far . wasn’t too bad to begin with but getting more and more scarred as it gets nearer . i am a fairly positive person ( tho terrified ) but my lovely husband today...
Hi All Was advised to join up by a work colleague after they found out I was diagnosed with CLL last week. I was diagnosed having a blood test following some unrelated heart issues. Now in the monitoring phase. Wishing everybody here all the best irrespective...
Hi all I'm new here hello I'm shaun call me Bean Hello all i was diagnosed in May 25 2022 I'm watch and wait Its all very worrying as i want to speak to otheres with the same as i have i worry about everything. Im not taking meds should i be ? Im...
Hello…I was diagnosed with CLL in April 2022 I was 55 years old,it was picked up during a routine blood test for an under active thyroid which I have had for years. Was a total shock, haematologists said to me in first consultation that of all the Cancers...
H my mum was referred urgently to A&E after routine blood tests showed alarmingly high WBc and Lymphocytes. She was told they suspected it to be Lymphoid Leukaemia. I’m only just getting over Breast Cancer myself and now am learning about CLL….(am I...
So I recently got diagnosed with CLL with a rare sub type nkcells whatever that means. Apparently it started in November 2021 but it was only Nov that my Dr got worried after my 3 months routine diabetic blood test so on Dec 28 he rang and asked me to...
Hi I was diagnosed with CLL in December , 8 days before my 53rd birthday after having routine blood tests to go on HRT! As far as I knew fit & healthy. Its a shock, I'm angry, I'm lost and I don't know how/if to tell the kids (14,24,29). Xmas and...
Hi everyone, I have been diagnosed with B Cell - CLL Leukemia just 2 weeks ago. Its taken 18 months to finally get a diagnosis. (Long story). Anyway I am struggling to process it all and haven't been to work (self employed) & I've just cried everyday...
Hi, My name is Cassie and I am 40, I have 3 children 14, 5 and 3. I was diagnosed with mgus in July 2023 (39) which was found after bloods from investigations into high blood pressure. My high blood pressure started in April 2022 and the blood...
I have CLL and will be starting treatment with acalabrutinib in the next few weeks. Any information and support is welcome.
