I was diagnosed with CLL, 2 years ago, managed to get on a trial using a targeted therapy monoclonal antibodies. The treatment cleared all my lymph nodes swelling. My lymphocytes levels have been normal for 2 years. Wanted to reach out to anyone who has...
I was first diagnosed about 5 years ago. It was picked up very early from a routine blood test. I have tried to ignore it, having been told that something else was probably going to kill me first before the leukaemia. However it has eaten away at my mental...
Hi, I have a lot of questions about HCL. I have HCL and I have been treated with Cladribine and I will be treated with Rituximab in 2 weeks. I have started having some issues in my skin. I have been reading that it can be because of the antibiotics...
Afternoon. I have recently been diagnosed with CLL. I have been finding the fatigue and affects to my Mental Health quite hard to deal with. I have taken sometime off work as I found it quite difficult dealing with work effectively on top of everything...
Hello, I’ve been diagnosed with CLL and on watch and wait, I’m looking for face to face support groups also. Can you have rakki with this condition? Thanks
Hi there. As of 11.30 today I now have a diagnosis of CLL and am on a watch and wait. More nerve wracking and waiting. How do people do it...its the waiting that is so frustrating
Hi all, 20 minutes ago my doctor rang me and told me i have CLL… it wasnt how i was planning to start my day so i thought i would pop in and say hi. Now what do i do ♂️
Hello! I have been on venetoclax and obinutuzamab for my CLL and SLL since January 2023. My labs are all looking good except for my monocytes which keep rising. My oncologist keeps telling me not to worry about it but can't tell me why it is happening...
Hi all. New to the group too. Diagnosed a few weeks ago. I'm 57 and have been feeling unwell for around a year. Put it down to menopause and another condition I have. GP kept doing blood tests though as he wasn't sure and spotted the rise in numbers...
Hi everyone, I have just been diagnosed with CLL. I’m 38 and have two kids (8&2) and a great supportive husband. I am struggling to process everything at the moment and awaiting staging information from a recent bone marrow biopsy and CT scan I had...
